Hi Pauline    Firstly I’m sorry to hear of your own diagnosis and predicament. I hope all you are about to go through goes as best as it possibly can.  My partner has been through a lot and things haven’t rolled out the way we hoped.   After the colorectal surgery and whilst she recovered amd got used to her stoma we had scans to prepare for liver resection. Unfortunately the Mets in her liver had spread as had the Mets in her lungs. Any more surgery wasn’t possible as a treatment approach.   It was pretty devastating news. The goal posts have changed so many times for us..... so we went through the process of readjusting.   She had the stoma reversal and really took a fair time to recover. She is an amazing woman. I found it very difficult with all else going on ( managing an 8 year old and covid in the mix ). But we got through.   All that seems to be offered now is ongoing chemo which she goes in for every second week for a dose on a Wednesday and has a pump that keeps trickling through for the following two days.   Her oncologist took her off the oxalyplatin because from her first rounds she hasn’t been able to feel the bottom of her feet anymore. She is now on fofuri and avastin.  We will have another scan in September to see how the treatment has managed her cancer.   Our oncologist has led us to believe it’s highly unlikely she will ever be cancer free.... and really can’t give us a “ time “ frame. My partner is forever hopeful that she will be one of the people that lives longer than expected and I can only hope that her inner strength and belief will be the thing that gives her the ability to keep being the wonderful mother and partner that she is for many years. Fingers crossed.   We will  go on living with cancer in all its unpredictable and changeable nature.   My sincerest best wishes and positive outcomes for yourself. I hope surgery continues to be an option and I hope you have some good amd loving care.  Best health   Tom ... View more

Thanks for the check in.  Unfortunately my partner now has also Mets in her lung. She will undergo colorectal surgery in 10 days. Much apprehension now because of current virus. Things don’t seem to be getting any easier..... but holding tight and making the most out of each day.  Im hoping things with your dad have improved and you are in a good space. Best wishes and best hopes for you and your family. ... View more

Thanks for the info. Hope your next scan has some positive results for you. We are at the early stages of all this it would seem ....... at least would hope that there is lots mote time ahead for my partner.   Im 10 days she is going in for colorectal surgery and I hope all goes well for her both with the procedure/ complications and also the covid19 vulnerability.  After that I guess we look at liver resection if both recovery goes well and it is still a possibility if it hasn’t spread too much further.   Tough times , and a cruel disease.  I hope you are also well and keeping as safe as possible through this challenging time.   Tom ... View more

Also what did stage 3A entail? Did you have Mets in any other organs and ho were they treated.   i hope you are doing well.   ... View more

Hi there,   What does NED mean ???   Did you have colorectal surgery back then, how did it go and any ongoing issues?   My partner is about to have surgery in 10 days ( and now with covid19 about we have cause for more concerns ).   Would love any insights.   kind thanks ... View more

Hey Neddyrum, sorry to hear your dad had to spend the time in hospital w infection. its great that he has a loving family around him in such difficult and unpredictable time. My partners situation is very similar, primary tumour in bowel w Mets in liver and lung.  It’s really is difficult emotionally and mentally to accept and live with. I think it’s great you have each other and can maybe talk and support each other. Being present and loving for your dad....best you can do really. This whole experience is so changeable as are our feeling from day to day ( or minute to minute ). Wishing you lots of courage, love and hope as you go. Tom ... View more

 .... and just to add if anyone has colorectal cancer with same staging with no option to operate,and is on a palliative path with ongoing chemo etc how that is or has gone for them   kind thanks  ... View more

Carlz  I just wanted to let you know my partner who is 47 and the wonderful mother of our 8 year old has Stage 4 colorectal cancer amd like yourself spread to the Liver. Sounds like she could relate to you on a number of levels. Her treatment started back in late November. She has remained positive and forever holds onto that hope, and optimism.  It is very or extremely hard for people who are close. I too have cried so much and am full of fear and sadness, but your advice to remain present as much as possible for that person is spot on. I struggle - this is beyond the hardest thing I have had to experience. I feel for the original post person. Whilst it’s not easy we have to straddle the weight and difficulty with love and living.  I wish you the best possible outcome for you both and all your respective loved ones. I hope through this experience we all find peace and love and joy and hope. ... View more