September 2023
So sorry for your loss. My Dad was in his seventies and that was hard to watch, I can only image how difficult it has been watching your young bother’s life change so dramatically. The end is brutal. All I can offer is that with time, the tears and bursts of grief do come less often, at least that has been true for me. Remember the good times shared and perhaps focus on a to do list of things you think he would have loved to see or do with you. Speak his name often so those around you can experience what he meant to you and offer their support. Good luck.
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September 2022
I am thinking of you Salival - your journey sounds very challenging and painful. Hopefully your side effects will abate soon and you will increase your intake in the days to come. You are courageous, I hope to read soon of better days for you. Hang in there!
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May 2022
1 Kudo
Wishing you well with all of your upcoming surgeries and or treatments. Your Boys maybe your best medicine as you recover.
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May 2022
Just discovered this post - I know I’m late to your post, but how are you now? Did you make it through all of your chemo, was that the end of your round of treatment? Hoping you have experienced some happier times since last September. Take Care
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May 2022
Hi Colin, I am so sorry to read of your confronting news. I have just lost my Father after his battle with Metastatic Lung Cancer. He too would panic upon trying to find a resting position. He wished to stay at home and Palliative Care were able to organise a ‘fancy’ recliner so he could rest more comfortably. They also prescribed an oxygen machine, which he despised but soon found some relief using. I feel your children will much appreciate your written words and cherish everything you can say to them, While your mind must be constantly racing at your journey ahead, my Father often told me of sleepless nights laying awake thinking about life. I hope your support team can bring you peace and comfort as you move through your journey and that you get to experience the beauty in the days ahead and enjoy many happy days with Family and Friends that love you. Hold them close.
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May 2022
Hi, I’m so sorry for what you are going through. It must be frightening if this is a new pattern of behaviour. My only experience with some behaviour changes were after my Dad had radiation to his brain lesions. The Dr explained that there would be swelling in his brain for a while and to monitor changes. He did start to curse more in our company and especially at my Mum ( his primary carer). He also started to urinate in a public place once in a garden ( he had been waiting in the car a while and not near a toilet) but he would never normally act in this way. I am not experienced with the symptoms of chemotherapy but perhaps you could call palliative care or your husbands Doctor ( in private) to ask if this change in behaviour is to be expected or some coping mechanisms/tips for if it occurs again. Take care, I hope you can find some answers or support.
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April 2022
On the 24/4 my Dad lost his battle. We had tried to grant his wish of passing at home. It become too hard, I don’t know how my Mother kept soldiering on as his primary carer. He become too distressed and frightened at the changes he couldn’t put into words. I felt torn the night he declared that he needed to go to hospital. One, a feeling of relief, two like we had failed him and that he would soon leave this world. It took several hours for the hospital to find his base line and get him comfortable.He did not rouse again in fear. It is the hardest thing I have ever had to witness in my life. My siblings and I all held tight to him in his final hours. He struggles no more. I am crushed, my heart bleeds.
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March 2022
3 Kudos
When do you know that it is time to stop working and stop tending all the” other” things in your life to sit beside your sick loved one, hold their hand and just be there? My Dad seems to have taken a turn in his journey where he is not feeling “right”, he seems agitated, scared and struggling. He wishes to remain at home. I am not his primary carer but I fear we are not doing enough to ease his pain?
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