Blogs - Page 163

Hi Everybody. I have changed the address for my blog site. I have posted all the links below! Love to all! http://thecancerstory.blogspot.com.au/2011/08/welcome-everybody.html http://thecancerstory.blogspot.com.au/2011/08/my-recovery-progress-part-2.html http://thecancerstory.blogspot.com.au/2011/08/part-3.html http://thecancerstory.blogspot.com.au/2011/08/part-4-week-of-operation.html http://thecancerstory.blogspot.com.au/2011/08/part-5-operation.html http://thecancerstory.blogspot.com.au/2011/08/part-6-post-op.html

Here I am 11 months down the track of fighting my PC and winning, so I thought. six months of fortnightly Folfirinox that completely knocked the hell out of then continually lowered doses as the tumor rapidly shrunk. Only 1 faint shadow of a lesion left in my liver out of the original 12 lesions found. I really thought I am just about home free for a while and that maybe I would be able to go on monthly chemo as the cat scan I had 3 months ago was nothing but good news. Think again.

Today was the first appt with the radiotherapist,tommorrow is the day of the simulator for the radiation and Friday is the day for the chemo oncologist.Why wasnt it until today when I was in the waiting room that it hit me right between the eyes "I have cancer".How can I offer support and best wishes to this community when I cant even cope with my own cancer.Thanks to all the wonderfully brave people out there I feel like I am not alone although I wish nobody had to go through this fight with this insidious disease.Hugs wishes and especially thankyou to all.X

What does this mean I asked but thanks to my wonderful GP and psychologist was able to understand that MDT was a multi disciplinary team who will work in conjunction over the next 5 weeks of chemo and radio,not some new disease I had contracted like mentally disturbed tyrant or worst still might die today.Oh the wonderful places our minds can take us when we are scared stiff,for me it was a lesson in not guessing just asking even though you may not want to know sometimes the answer is better than your own thoughts.Wish I could be as brave as the many wonderful people out there who know so much

My partner is having an MRI this Monday which will determine whether the drug works or not. If not, he'll not be part of the clinical trial any longer and have to find a different treatment. We hope the tumour stays the same size if not smaller. Fingers crossed!

My husband met with his oncologist yesterday who gave him the good news that his brain tumor had shrunk due to radiation treatment. We were so happy for a few minutes and then POW!!! he suggested very strongly that we need the Palliative Care Team to be involved NOW.My heart just sank from being on such a high and then swoop down to the lowest low and then stabilise. He has a scan next week to see if his lung cancer has spread,if not then his medical team will decide if a combination of radiation and chemo will help him be more comfortable.At the moment he is struggling.