About maddie86

maddie86

thanks.. its weird although everything seems ok.. when i tell people they give me this look like they dnt think its going to be.. then that makes me feel crap, just gota ignore it i think!

Hello Maddie86, I understand you would like to meet up with ppl from Melbourne. I too feel strong about this. However, after reading Felix blog, I understand it is not a good idea. All I can say to you is that I have this need too, to meet others in similar situations. I did what Felix suggestion 3 mths ago and I have found there are meetings first Thursday of every month, in the SE Suburb (I won't say where unless I have permission to). Great bunch of ppl and last month they had a guest speaker who spoke about Mental Health and it was so interesting and enjoyable, we have coffee there and leave. However, I also find that once a month isn't enough for me. As I like to fill my diary daily, even if it is just coffee and chat, as this inspires me to get up in the mornings. I find myself going to the shopping center alone, sit and read the newspaper and have a coffee, as there is no one else that I know that has the time to do this with me. I feel if we could establish a safe meeting place would be great. But I cannot instigate this at this time. Best regards DaphneRose

I_Miss_My_Mums_

Hey Mads, Reading your blog just now and realised there was something i was supposed to do today - damm! Listen, im here please dont be afraid to pick up the phone and send a txt telling me you feel like shit, if you can call the cancer helpline call me! - we dont have to talk about it or; when your ready, we dont have to stop talking about it! Watever you want Mads, dont sit there and feel lonely when im here feeling just like you, i went through it too. Whenever you need a friend mads, im here. I really want to build up a friendship with you, things are going to be hard for both of us for awhile - so remember im here ok :) Tske care hun xoxo

maddie86

hi! im 23 also and i know how hard it is supporting someone with cancer.. my bf has bowel cancer.. i struggle everyday to keep things normal but its so hard. Ive noticed my friends arnt there for me like they used to be.. it seems like they dont care. I cry in the mornings sometimes on the way to work.. thinking of shitty things ahead... the thought of my partner passing away is to much for me.. the pain is to real and i hate it. I keep trying to remember our lives before cancer and its very hard!

samex

Maddie, I really admire how you are sticking with him.Yes the waiting is awful. If he is on oxalipalitan, he may be having some neuropathy(nerve damage) in his hands and feet. I have had difficulties with this and I found that the best way to ease the pain was with massage. My son used to rub my feet for me. It would often help me through bad nights. Take care, S

maddie86

thank you.. just today i was speaking to a lady whos brother had cancer it got so bad he went into a coma.. they actually gave him chemo while he was in a coma and then they told her it was time to say goodbye.. she told me the next morning he was up eating breakfast... just proves that u dont really have to believe what they tell u.

He who takes medicine and neglects to diet wastes the skill of his doctors. ~ Chinese Proverb

Hopeful

Hey Maddie, I completely understand what you are saying about living in fear. I am 28 years old and caring for my hubby with a non-operable brain tumour and I am sh*t scared! I feel like our future has been ruined and life will never be the same as I constantly have this dark cloud of fear hanging over my head. Everytime he has a headache or has an upcoming scan or dr. appointment I just feel sick to my gut. My hubby was a big strong gentle giant before all of this happened and I hate that I am now the one who has to be strong and I really struggle with that. These young men are supposed to be looking after us and yet here we are with the roles reversed. It is way too scary and overwhelming to think about the future when things are uncertain but I am finally learning to 'live in the moment' as I have been seeing a psychologist who is changing my way of thinking. I highly recommend speaking to a counsellor/psychologist etc as it is changing my life for the better (did not want to go on any anti depressants etc as wanting to have another baby). It is so wrong for us to be dealing with this horrible disease at such a young age and I hate it but I think I am starting to accept it (some days better than others. I hope that you are doing ok and I really feel for you as I can understand what you are going through. Here if you need to chat xo

Tash77

My son is 18 and has primary central nervous system lymphoma and has one large tumour in his left hemisphere. He is a transplant recipient of a kidney at age 2 so the PCNSL is a direct result of long term immunosuppression. he is about to have his 1st scan after 3 doses of chemo to see is its working. we have been told that if its not working we don't have any more options for treatment and will be looking at end of life palliative care....very nervous to get the scan done and results.

maddie86

thanks guys for ur stories.. it gets harder and harder but he has his scan in 3 weeks so im just hoping for the best....

Re: hope

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Re: Hey guys - im a 23 yrd old carer of my beautif...

Re: i hate waiting!

Re: hi I'm new -intorducing myself - carer of grad...

Re: diet?

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