June 2019
Hi Malcolm Thats good to read how your chemo went,well done,I was told to drink plenty of water as it helps to flush your body. kj
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June 2019
1 Kudo
Lisa gee what hard time you have had over the years, and then a reoccurrence of cancer,it’s good that you have a great circle of people around you,it is a shame that you can be judged on appearance instead of what is actually inside a person,kindness,love and good deeds,our animals don’t care what we look like, only that we look after them with love ,kindness and care for them ,I am sure your animals are well treated,my granddaughter has a dog and a 16 year old horse they are treated like royalty,horsey people tend to be like that with their animals. To have been through all you have over the years and still be around looking to help other sufferers ,says lots about the kind of person you are,your courage,strength ,will to live ,and compassion for others.
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May 2019
9 Kudos
Type of Cancer Pancreatic tumor in head of pancreas. Prognosis Had surgery then during chemo I was told I was terminal ,chemo was ended early because my body could not take anymore. Survival time Diagnosed 2010 into ninth year of survival,with yearly check ups. I still take it one day at a time.and enjoy life
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May 2019
Hi Malcolm I think that what you are going through is a normal part of the diagnosis of pc ,people may say that you have to stay positive ,but Its just not possible to be positive all the time,I found meditation helped me,depression can come as well,don’t hesitate to talk with your GP about what’s happening to you and your thoughts if you haven’t already .I know it’s hard to get your mind on other things,but if you are able try and focus on getting your mind and body prepared for the chemo and Whipple by walking if possible ,or very gentle exercise it will help later on with recovery,it is a very very difficult time in your life ,but you may be surprised what strength lies inside of you.Try and take it one day at a time for me that was very important. How can you not be emotional at times we all have different feelings and concerns about the future.
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May 2019
1 Kudo
Hi Malcolm My recovery from Surgery to up and doing things like going camping without heavy lifting was around three months,but I would say it took up to twelve months before I felt really reasonable,finding the right food for my body took some time .I feel pretty good now with an occasional off day,it was slow improvement for me in the beginning,but a friend was back at the gym in three months, we all recover differently, I just took it one day at a time ,chemo did knock me around and yes it helps to try and stay positive.I am back to a reasonably active lifestyle,it took quite awhile to get there but patience paid off.I am doing what I was before surgery, just a touch modified.I was at the hospital Rehab recently for sciatica ,where the physiotherapist explained they have a program for people who have had a Whipple to help with their recovery,that wasn’t around during my recovery,so that’s a definite positive.Good luck with Chemo you will have your off days but in the end hopefully,you will have more good days than off ones. kj
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May 2019
2 Kudos
Hi Malcolm The last time I spoke with my oncologist she told me that having chemo before a Whipple surgery helps the patient with recovery during chemo, as opposed to after surgery,it can also can help shrink tumors before surgery for a better outcome.Like yourself I had a stent before a Whipple,after surgery it takes awhile to get used to food again,the more you are up and moving the the quicker the recovery will be it takes awhile to get used to the new plumbing after surgery, pain should be covered with meds,my surgeon said they are always improving on techniques my surgery was years ago.Chemo can effect everyone differently so have an open mind and see what side effects if any occur,good luck with your surgery.
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May 2019
1 Kudo
NancyB When you say pain at night do you mean when laying down or is it after the days meals are eaten,it can take your body a long time to adjust after a Whipple ,I had malabsorption for over a year it took ages for me to have any weight gain,the chemo does not help with diarrhoea ,I still take creon occasionally years later,what kind of pain do you mean is it the pain before a bowel motion and then diarrhoea or continuing pain.Are they putting the pain down to the creon or something else.
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May 2019
If your husband needs medication to control his mood swing and is not taking them ,it makes the situation much more difficult,he is not being fair to you or himself,if his moods are helped by meds ,have a chat with your GP or medical team they may be able to reason with him,he will be hurting inside about the future,but it does not help with anger and lashing out ,we all process bad news differently,I hope a carer who has faced what you are going through can share some advice on what helped them. Dont neglect your own physical and mental health also.
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