Dear Ron You are an inspiration to me. Feels good to know that there are people out there like yourself. Your right about it feeling like you are just poisoning your system with all these drugs that are suppose to make you better. I can only imagine what you are going through. It does suck. Feels good to say that hey. Thanks for the advise. I am turning 40 next year and am planning a get together with 5 of my friends from school as it has been too long since we have seen each other. Funny how everybody just jumped on board and is very excited about it. I shall be sending you some light for your journey. CS (aka Chocolate Sprinkes) my new call sign since I have been conversing with Jellybean. It just makes me smile so I'm doing it ... View more

Hello again gister. My tumour has spread to the liver so surgery is not an option unfortunately. Hoping 400mg can get the job done! I haven't really had any side effects yet thankfully. Sorry to hear about your tumour progression, all the best with your new treatment and next scan. 🙂 ... View more

lHi Cheryl I am 31 years old and like Ron was diagnosed with stage 3 bowel cancer at 29. Times can be very daunting, it can be good going on the internet but what i was told was to read the cancer council info as its definitely correct. The chemo isnt an easy ride but i found i wasnt as sick as some other people having chemo for other things. Lots of rest and listening to your body is my advice and becareful with cold things/food, the nurses will explain all that, i used to ask hundreds of questions and found the chemo nurses fantastic more helpful than my oncologist at times!! Goodluck to you and your husband on this journey lots of positive thoughts coming your way Regards Stacey ... View more

Thanks for your well wisses Ron. The support site i was given to me at the cancer centre is... http://www.leukaemia.org.au/web/index.php The specialist also told us the brain is the only part it doesn't affect.I hope she's right. Good to hear you don't have it,what was your eventual diagnosis? ... View more

They still don't know what is wrong with my kidneys Sharon. I lose up to three gramms a day of protein thru my urine. I have had three kidney biopsies now and they all show problems with my kidneys but nothing that relates to the known kidney diseases. My rheumatologist and nephrologist both believe it is from chemo I had 14 years ago. They enhanced it with stuff called levamisole. It is a vet drug used to kill parasites in cattle and sheep. My rheumatologist is an ex oncologist and he is quite scathing on its use on people. The only drug that has helped my kidneys is methotrexate and that stopped working after a couple of years. My nephrologist and rheumatologist both want me to try humira and my neprologist has suggested cyclosporin,cyclophosphomide and imuran. I'm not going there ,I have had it with poisons.I do a 24 hr urine collection every three mos to monitor things. It has stayed static for a couple of years but I have had peripheral neuropathy for several years and it is getting worse. I have just been dxed with type two diabetes. It is starting to look like cancer was the least of my worries . Hugs to you and your husband I hope something turns up soon to help you,Ron. ... View more

Hi Loz, I'm new to the site too. I hope you're feeling ok today, we all know the low days and high days, I had a low one yesterday but today...so far so good. I have a wonderful partner but found that a couple of supposedly "good" friends, dropped me like a hot potato after I was diagnosed, but that is their problem, not mine. It's sad nonetheless. We do need to talk to others who can understand where we're coming from. So I'm very pleased to meet you and hopefully we'll be able to help each other through the emotional maze we find ourselves in. Have good day !! J ... View more

Hi lnvs, hi all, this has been an area of special attention for me. I have wondered continually about the connection, and have viewed many a paper and article to support this connection. The connection goes something like this: Trauma=disruption/interference to nervous system=breakdown/exhaustion of immune system. Cancer begins as a virus, something that lives as a potential for all people. It is the immune system's ability to fight the virus that is key to "getting" cancer. If the immune system is in some way challenged in cannot do this. But, there are other things that can compromise the immune system too, such as digested toxins - ie poisons (food), electrical charges (wi fi and the like), microwaves... etc, etc. These all, in someway, provide the same results to the nervous system as a traumatic experience - essentially they are all traumas, all disturbing the nervous system, and thus immunity. Please keep in mind that this is a simple explanation of something more complex. ... View more

Guys, this is a great thread for us to add to. My chronic pain began in the vaginal area two years before i found out that I had cancer. I couldn't sit on any type of chair, without this dull, ceaseless pain, and pondered and deliberated as to the cause of it. I only found relief when lying on my back. I won't go into graphic detail, but other symptoms in the region started to manifest, and I got really frightened. I began to suspect i had cancer. But I was living in Los Angeles with no health insurance, and I couldn't afford to address this problem. Luckily I managed to get myself and sons back home to Australia. I was told my mother had cancer. When I told her I had cancer, she refused to believe me and said I was lying. Well, the rest is history. I have a very high tolerance to pain, but when it is enduring, you don't realize the strain it puts on your face and on you to cope mentally and emotionally. It takes a lot to make me crack under stress, and I found myself just grinning and bearing, knowing there was no one to share anything with. The silence of it is awful as we human beings need each other in good and in bad. This big fall I had just before Easter put my arms into shock because my palms took the brunt of the fall, and I am still in pain. My whole body is in pain, so I am not doing anything but mostly resting and allowing time to heal the pain. However, the Neurontin for nerve pain is working. ... View more

My apologies Karinise, I stand corrected ,no disrespect intended, Ron. ... View more