Everyone I meet has a cure. They mean well and want to help. My advice stick to one professional first and politely thank everyone else. When and if your chosen Dr’s method ceases to work then look elsewhere. I was given six months to live in 2017. The eagle feather with the crystal bound to it with leather thong is very nice but used more as a decoration than a cure.😂 ... View more

Great idea, I was thinking of putting some videos on the blog too ... View more

Hello 🙂 Firstly, how are you and how are you feeling? Did you end up finding a support group close to home?   Your post jumped out at me as I am scheduled for a D&C this coming Friday. Very similar symptoms to yours, irregular bleeding, extremely heavy some months, one in particular I lost a lot of blood (although doesn’t sound as much as yours). After an ultrasound in my gyno’s office he found a mass on the wall of my uterus causing a bulge into my uterus. Do you mind if I ask whether you presented with an abnormally thickened lining? I am also pre-menopause and i am just curious as my lining has presented quite normal. Apparently that’s a good sign.   thank you for reading 🙂 ... View more

I have a private ENT that specialises in cancer removal in the throat with a TORS machine. The public sector hospitals do not allow usage of the TORS for ENT.  Paid a bit to use it in a private hospital as the costs of the Tors lies outside Medicare.   Unfortunately the cancer has re-occurred in the other tonsil so I requested a referral to the public cancer center for radiation/ Chemo treatment. I need more support this time that private doesn't give without mortgaging your house.  Got a call back after 1 day and seeing the radiation oncologist next Tuesday.  Not having an op this time as the cancer is  a bugger and we don't think having another op will totally remove the cancer.  ... View more

I don't know about exposed bone - just that intense pain radiating down the jaw and side of the neck is a thing for me.  Plus teeth starting to go wonky.  Cancer is the gift that keeps giving, even after you beat the disease, that's for sure.   Connecting with someone with your EXACT diagnosis is probably a great thing (in terms of getting anecdotes on the treatment, recovery, all that stuff), but my impression is that your challenge is social/emotional as much as medical - and if you start to form bonds with people who have faced the same GENERAL challenges (cancer in general or your type specifically) I think you'll find groups of people out there dealing with some very similar situations and challenges, who could give you some empathy, understanding and a friendly ear.   (Whether a structured group, or looking for random new friends, that's up to you - but I'd just offer my impression is that you're kind of aching for human contact and understanding, a bit starved for basic human intimacy - not the rude kind - the kind where someone hears you, gets it, and reflects their understanding back to you).   Panic attacks are outside my direct experience, I just know a few people who have had them - agoraphobic type reactions, palpitations, the classic stuff.  I personally have a (completely not OK) tendency to trivialise them - a kind of 'take a tablespoon of concrete and harden up' dismissive attitude.  That's my personal reaction, because I respond to it in a similar way to reacting to a bully - if you start backing down you end up retreating for the rest of your life - the only answer is to surge forward and fight.  (But that's just me, gross as it may be, offering authenticity if nothing else).   Thing is - COVID is just about the perfect time to bundle up at home anyways .. and with the interwebs available, and sites like this one, there are communities to be joined and reached out to.   I'm sorry to say it - you won't ever have your old life back.  It's gone.     That applies to everybody.  Yesterday is done.   Our only option is to keep moving forward.   My suggestion is - cherry pick the best things out of your new life, and celebrate them, and find new and better ways to enjoy them.   AND - also cherry-pick the WORST things, itemise that list, and try to have a specific strategy to deal with each of them .. one at a time or concurrent, whatever is best - but in tackling a problem, even failing spectacularly, you take a kind of control - whether the outcome is good, bad or indifferent, I think taking that approach helps a person's outlook generally.   LASTLY - get on the front foot with the sadness and social stuff.  I know life can be an utter shock-tacular shit-show, there's no two ways about it.  I'm a recluse-by-choice, I personally focus on my 3 young kids & spouse, as such don't really have the space to form honest new relationships .. but I promise you there are wonderful and lovely people out there waiting for you.  You can navigate together to new understandings and truth.  My sense is you urgently need some friends - I'd suggest finding one of the forums here and be as simple as that "I'd like to make some friends".  (Just be careful of weirdos and predators - but my sense is 9.5/10 of the people are pretty solid).   Sorry again if this is garbage advice - you seem like a clever person, just a bit lost and bereft - sometimes we need an outside perspective to shake our way of thinking up a little - I'm just trying to offer that.   Best of luck.  I hope things get better for you - not just prognostically/health, but in general. ... View more

The short answer to your question is no.  Two of my children are nurses and they had to pay for their own vaccinations apart from the ones which are free to everyone (ADT for everyone and a few others for people in specific risk groups) or employer provided.  If I remember correctly, the cost for standard vaccinations can't even be claimed as a tax deduction. ... View more

I was cancer free 2018 after going through really gruelling treatment . My lung cancer has returned. It’s given me an opportunity to put everything in order. Many people don’t have that time to plan. I can’t do much because of the breathlessness, I was always active it’s quite depressing and boring virtually doing nothing all day every day. It’s good to have a forum like this where your not alone or judged. Thank you ... View more

Wow Simon you have a way of making me think which is pretty damned good with my brain right now.   The best three things in my life right now:- 1/ Has to be my family. They are an endless source of support and humour and I don't honestly think I would be here if I had not got them. They will even crack jokes about cancer and even about death and what they want me to do when I pass to prove there is life after death. My eldest is a gamer and she has definitely asked me not to write anything on her puter to say hey hun I am still around cos it would scare her shitless but I can possess her dog and make it bark to go outside to pee instead of peeing on the floor all the time. Go figure how that girl's mind works. 2/ Has to be the fact my husband left me a while after surgery and I was still in hospital. I am not bitter about it at all and am really happy he did so. Now I can concentrate on me and fighting this darn disease and not worry about doing his dirty washing or if he needs to talk through his problems. I really do simply wish him all the happiness in the world. 3/Believe it or not, my cancer is one thing too. Before it I was in a very unhappy marriage, that is not so now. I am in a lovely aged care facility and although it happened about 10  years before I expected it to I am grateful to be here. I was also alienated from 2 of my daughters and now I have terminal cancer they are back in my life and we are loving each others company. I am now a much nicer person than I was before I got sick and my life was so bad prior to my illness. I have lost 30 kilos and feel all the better for that. I am more active and I have found an inner peace that is breathtaking at times. I suffered from a mental illness and yes it is still there but I no longer need heavy duty medications for it and I am symptom less from it. My mind has seemed to have shifted into gear and is cooperating with me instead of fighting against me. (Yes I am being supervised with this and didn't just stop taking the meds off my own back.) My kids tell me I am just like their old mum of about 20 years ago.  I now allow myself the freedom of letting out my feelings and I laugh and cry and get grumpy. I dance and sleep and watch TV and walk when I want to. I have much to be thankful for.   Thank you for this thread I enjoyed it immensely. I think it is important to be grateful for the wonderful things in life at a time it is so easy to forget.   Regards Suz123.  ... View more

I read your post with great interest and I am facing the end of life myself and I know your mind goes in every different direction as you try to sort out everything before you go.  There is one thing and I know it is in your heart because you love her dearly. Just wish her every happiness in life once you have gone. Full stop. You don't have to name it. She will have no desire to find a man right now nor for some time after, if ever. She loves you dearly and it will take some amazing man to ever try to take your place. There is no one else that CAN take your place as you are a unique and loving man so please rest easy.  If, in the many years to come she finds a person that lessens the pain of losing you, you have no idea what form that will take. It might just be friendship. So just wish her happiness, pure and simple.   I am in a position where my partner left me a couple of months after surgery and I was still in hospital. I still wish him all the happiness in the world.  However I am far from alone and I am at peace with my final journey. I have a deep and enduring faith that helps me no end. If this subject is too difficult for you then place it in the hands of your god as you do have faith too. When I discover something too difficult for me to deal with that is what I do. It really helps.   I wish you all the peace in the world and I know you wish that for your darling wife so don't think about her having another man, love her as much as you can so you stay in her heart forever. There is no man that can or ever will take your place. Enjoy every moment you have with her as these are very special times for you both. Take this journey hand in hand.   Kind regards, Suz. ... View more

Oh I like this idea! 🌟   Can't wait to see what people contribute! ... View more