mine turned out IDC, I am having a mastectomy but dont know about chemo yet ... View more

Hi Margaret, thanks for the support, I did get my results and it is invasive ductal carcinoma, grade 3 on the Nottingham scale??   ... View more

HI sorry that im not really answering your question as I am too new at this. Im sure someone will though!  I am 55 and was diagnosed only a little over a week ago with IDC, sasw surgeon yesterday and having mastectomy in three weeks (20th). I was just a little alarmed by your post so instead of answering your question, I am asking one - sorry.  I asked the surgeon the chances of recurrence in the opposite breast and he said would be unlikely ie I was thinking a double mastectomy, if losing one I may as well lose both. but I read here that you did end up with it in both breasts? ... View more

Hi Margaret, finally saw surgeon yesterday, seems like it took fore er although really it was only just over a week!  He has advised mastectomy and auxillary node??, I had already accepted (i thought) the idea of a mastectomy  so I jsut said I would follow his lead.  And yet, although I felt so mentally prepared, I got back and was a mess, oh these irratic emotions are so fast and change by the minute, its hard to keep up with myself 🙂 so please to here you are doing great though. I dont know about chemo, he mentionned it and said would know more a week or so after surgery when they get everything back and have their team meeting. All the best and keep in touch!! ... View more

HI kate 🙂 i have already benefited so much from this site. I saw the surgeon for the first time yesterday and the  decision was a right mastectomy and auxillary nodes. The op will be on the 20th, so 3 weeks time eeeek.  Sometimes I feel a bit calmer knowing what and when it is happening next but then a minute later I may overreact to something really pathetic then cry because I am over reacting and feel guilty. bit crazy lol. silly things. like I often drop things and as a paraplegic I just use my pick up stick to grab them. yesterday I dropped a pen and started to get really angry etc.... always sleepy but I guess it helps the time pass!  ... View more

that previous post should have read desmoplastic 🙂 ... View more

sorry meant desmoplastic stroma! ... View more

HI and thanks for the reply 🙂 turns out I was being a bit too optimistic. The biopsy report was invasive ductal carcinoma, hi grade on the Nottingham scale and on desmosplastic strome. I understood everything but the dermoplastic stroma. Did a lot of researching on it but the articles are a little too scholarly to comprehend. What I did pick up on though was that it creates a more invasive, rapid growth and poorer prognosis. If anyone out there does know what desmoplastic stroma is, it would be really good to find out. I wnat to be as educated as I can be to make sure I make the right decisions 🙂 ... View more

hi and thanks so much for the support. I dont know the stage yet as have not had surgery. It only says that it is high grade on the Nottingham grading scale, so quite invasive. It also says on a dermoplastic stroma. I have looked this up and the articles all seem very scholarly so I had a hard time udnerstand. What I did pick up on is that it does seem to have a poorer prognosis. So I think, like you, if given the choice I will be going all out ie every treatment, no matter how rough. i have also decided, given I am paraplegic and cant get out of the chair (making mammograms not possible) that I am going for mastectomy - bilateral. I doubt it would be jsut a lumpectomy anyway, so I figure what is the point in losing only one? all the best Bev ... View more