March 2011
It's not actually all THAT far, it's just that the bus connections are abysmal! But she's had her first Chemo session yesterday, today was a bit wonky and she needed haemoglobin, but she might be home as soon as Monday for in between sessions on Thursdays ... but yep, we're still looking to move her to a nicer hospital that is also a tad closer and has better amenities, so that will make her stays more 'enjoyable', if such a thing is possible ...
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March 2011
Hi,
The fatigue is so my 'new normal' as are the joint aches and pains. I too found this site by accident after I finished all my treatments. I wonder why nobody told me about it - especially my psych who encourages me to talk to other people?!
Good luck, have a great trip and worry later. Yes it is possible to put the worry off I did it at Christmas- went away and had the best one ever.
Ally
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March 2011
Hi John Jack
Thank you so much for your reply. You do not realise how much hearing this has relieved me. I understood that fatigue can go on for years as I was warned about this. It's just that I felt normal for almost 3 months so thought it was over and yes it is the hitting the wall fatigue is what I am experiencing. The timing is lousy though although its never a good time to be this fatigued.
thank you again
cheers Chery
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February 2011
Hi Mike49
Your cancer story itself is extremeley interesting BECAUSE of the fact that it has all gone well.
Congrats and good luck for the future.
Di 🙂
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February 2011
Hi Vicki,
I love your comment 'finger farting' - is that my problem? All this time I have been thinking it is 'chemo brain' not telling my fingers what to do!!! Hope you dont mind, but I am going to 'steal' your saying - I like that better!!! haha
These forums/topics are great for 'people like us' - our little sisterhood/brotherhood 'thing' we have going, in so much that we can say exactly how we feel! If we say 'gee, I'm exhausted today', or 'I feel like shit' or ........whatever, we know the response will be from someone WHO IS FEELING EXACTLY THE SAME WAY!
My partner STILL doesnt get the fatigue/tiredness side of things. After 2 years, all he says is 'you need to go to bed earlier!!!' I just cant get it through to him that I/we have an exhaustion that cant be cured by sleep,especially when undergoing chemo.
Vicki, the family support is necessary, and I do have that, but they 'just dont get it!.
Hope everyone is feeling Ok!
Di 🙂
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January 2011
Hi there megan elizabeth,
Hey i love your pic too :)
As for drinking while having chemo i think if your Dr Onc says it's ok then go for it. Personally i was far too sick to even think about it when i was having chemo, but i believe it's a personal choice;)
Mez
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February 2011
Hi Maggie and all,
I would be interested to hear other peoples experiences on this. Personally, I inevitably kept these details to myself when it came to employment, as my experiences when I had disclosed in the past, were less than ideal.
I have heard of others though, disclosing the information and doing well. My friend that I think of in particular, found that his boss had been through the same cancer, and they formed a close bond.
I now work for myself. I've found avoidance to be the best strategy yet 🙂
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December 2010
Whilst this is something of a melodramatic Victorian view of the world, there are aspects of it that sum up for us where things are.
Have a safe, peaceful and happy Christmas and mat 2011 be better than 2010.
Cheers
Sailor
All day we fought the tides between the North
Head and the South,
All day we hauled the frozen sheets to scape the
storm’s wet mouth,
All day as cold as charity, in bitter pain and
dread,
For very life and nature we tacked from head
to head.
We gave the South a wider berth, for there the
tide-race roared;
But every tack we made we brought the North
Head close aboard:
We saw the cliffs and houses and the breakers
running high,
And the coastguard in his garden, his glass
against his eye.
The frost was on the village roofs as white as
ocean foam;
The good red fires were burning bright in every
’long-shore home;
The windows sparkled clear and the chimneys
volleyed out;
And I vow we sniffed the victuals as the vessel
went about.
The bells upon the church were rung with a
mighty jovial cheer;
For it’s just that I should tell you how (of all days
in the year)
This day of our adversity was blessed Christmas
morn,
And the house above the coastguard’s was the
house where I was born.
And well I knew the talk they had, the talk that
was of me,
Of the shadow on the household and the son that
went to sea;
And, oh, the wicked fool I seemed, in every kind
o f way,
To be here and hauling frozen ropes on blessed
Christmas Day. Robert Louis Stevenson
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