Joe,  Thanks so much for your reply, yes that all sounds familiar and great advice. I've been trying to encourage him to join the forum but baby steps, at least he lets me read out the replies and also some of the other posts.  He didn't want to know about it before. I think he felt he could only deal with what he was going through without hearing others struggles.  So you have your 2nd bout of cancer? Is that right? Not what anyone wants.  Glad you have your wife to help you through. She sounds a sweetheart.    ... View more

Although you wont feel like it you must try and exercise even if it is for a short time and try to built it up each day it will help you with the fatigue aspect.  I have done this myself and it was recommended to me by a cancer nurse.  Do you have friends you can ring up and talk to them maybe you could go and meet them and ask them about their lives and get yourself out this will be a thing to get you out of bed.  If you stay in bed you will lose strength in your legs which could make you feel worse.  Please dont be negative about your life it wont help you.   ... View more

Hi Rick...    I did consider trying the blog thing but, after insurance running out and my deciding to pretty much let things take their course...I found that I had no way of knowing whether the new problems arising by the 6th month were chemo/Rad related or the cancer returning.    My neck and face became pretty swollen, and somewhat disfigured and once again swallowing and eating was becoming problematic.  I pretty much decided to let it take its course and check out when eating became too painful to try.     A couple of weeks ago a friend asked me to google fenbendazole and Joe Tippens.  Research on Fenvendazole lead me to trying this.   I'm on Day 4, and can only report that my ability to move my neck vertically and laterally has suddenly dramatically improved.  My appettite has also improved, though my ability to swallow and the accompanying pain are still the same.    I will be happy to share the specifics of my findings on a personal basis as I journey through this 3 month experiment if asked.  My email is googling1757@gmail.com.    The reason why I hesitate to post a blog on this group is...I have no clue where this experiment will lead and none of us here need false hope.    The research on Fenbendazole looks pretty convincing, however, and I was sinking with no help in sight...     I will certainly share everything I document for the asking!    Cheers, Joe Aristy ... View more

Hi Capt'n...    Sorry to hear it's trying to mess with you again.     Came across a fellow named Joe Tippen and research on a product called Fenbendazole...decided to become a guinea pig since my throat ulcer has been getting progressively worse.    My email is Googling1757@gmail.com if you'd like to keep track of how this goes.   Cheers, Joe ... View more

Hey BugZap!      And I thought the Neck Swelling thing was either the too many hours in the Arizona Sun or too many Pabst Blue Ribbons!     Yah, the neck swelling started two months out...after last Rad, but I had already started working in the sun.  I'm doing a better job at covering myself and that seems to stabilize it.    Night dryness is pretty fearsome...but I've found that gargling with baking soda stretches the hours and gives me sleep time.   I think I'm down to one salivary gland...sometimes, when dryness just won't let me rest, i just lick some baking soda (which can cause gastric probs is some people...).       Unfortunately my insurance ran out and I kissed my friendly neighborhood Oncologists goodbye...and will let things take their course until I can get back to work or make it to retirement age in three years.     Otherwise life is good.  Glad to hear yer hanging in there and making the best as can!    Regards,    Joe ... View more

Hi Kate   Thanks for the reading material. Is this this your revenge for me sending all those empty virtual books to @Lehiatus  and @Lampwork54 ? You have to send me content! 🤓   Well done. Better effort than I. This should keep me away from Dr Google for a bit.   The chemo has been mostly tame since the first day. I've been feeling a bit over stimulated today. I think it may be the nausea drugs, only for two days after the oxaliplatin. I was told it was a stimulant and couldn't take it close to bed time.   🌨🌨🌨🌨🌨🌨🌨🌨🌨🌨🌨   We got snow in Canberra tonight. So cold on chemo-ridden fingers, but worth it. Nice treat.   Cheers   Phil ... View more

Hi Captain...     Agree with that laundry list.  Three months outta Chemo N Zap my last Salivary gland set online takes a vacation anytime I reach for a Pabst (and God Help me if it's a Heineken!).  Same goes for that old Latin Espresso.    I'm still able to enjoy the Arizona Summer Sun if I ignore the swelling of the neck (no more Tanning-now its Swelling after sun bathing...).    I've taken a regime of extreme exercising and have found that gaining that 23 lbs I lost seems like a pipe dream (and never mind gaining muscle density-I'm Super Sparse)...but only hard work and exercise keep fatigue at bay.    Weird but the day I take it easy means two days wanting to play couch potato.     Its a different life and outlook...for us Cancer Veterans.     Regards ... View more

Good to hear your recovery is progressing @Azjoetrucker!   How have you been this week?   Cheers, Kate ... View more

Hi Kate...I believe so.  Took thee weeks of ferrous sulfate pills 2x daily and Geritol multivitamin 3x per week.     Fatigue is now behind me, thanfully!    Regards, JoeAztrucker. ... View more

I can relate. Youre doing a great job...yes its ouch. I had 5 weeks radio on right side after masectomy...and skin went raw ..open wound in the last week.. Mepitel gauze..heaps of solugel..applied constantly..then covered with stretchy bandages.. That was early April...its completely healed now. Yours will too..Good luck and keep strong 🙂    ... View more