Hey Linda Same with burning, my neck looks a bit gruesome at the moment and might have another staf infection i think. Had a swab done last night, so will see in a couple of days as to what is what. I bet you are enjoying being home. I am actually staying with a g/f at the moment as i live quite far out of town. Once my skin settles down i will go home to my house. The nurses dont like travelling so far out of town to treat someone, so is just easier this way and i cant be bothered to have to convince them to travel. :) Take care and hope your burnt skin is going ok for you Julie ... View more

Hi Anita Thanks, those points are not mine alone. I observed plenty in the 7.5 weeks i spent away from home and just about every other person that was staying at Milroy had experienced similar difficulties. Of course it then branches off a little more as you put individuals into the equasion. It is just part of the challenges that are faced by country patients. The country patient aspect really is something that needs to be addressed differently to how it currently is. 🙂 Thank you for raising this discussion. Julie ... View more

I would hate to have to travel 100kms for treatment. I have just done 200kms for treatment on a weekly basis at one stage and it was incredibly tiring on top of having chemo. In fact it made me think of those that live a little closer and how much harder it would be for them. For instance, i live in bunbury west aus and i can stay overnight and that will be covered by pats. Those that live a little up the road from me at mandurah, are expected to travel daily. Now as far as i know they are covered by pats for travel but they are unable to stay overnight. That would be incredibly time consuming and tiring. How is one supposed to keep working if they are expected to travel so far? Most of the travel is done in groups with vehicles supplied by the cancer council i think. It is time consuming because you have to wait for everyone else to complete their appointments also, then of course the time spent travelling etc..... ... View more

Hey Chels Thanks ... yup it is great. This has been the longest time i have spent away from my son, so was nice to get home to one of his big hugs. 🙂 Thank you Julie ... View more

Heya Is this happening in 2010 or has it already happened? Julie ... View more

Hiya Iain GLad to hear you are feeling less angry and more balanced. 🙂 I hope you dont feel embarrassed as we all go through times that are tough and yes our feelings are very real, along with suffering. I cried while the oncologist came to my room and i couldnt stop crying. I laugh about that now. At the time i sobbingly told him i would be ok, i was just having a sad morning. haha I just feel that what we experience and feel as we go through all of this is natural and normal. It is when the feelings etc... go beyond that point that we need to worry. take care Julie ... View more

Hey Larn I like "suck it up buttercup" lol ... View more

Some days i feel like sharing what is going on for me and some days i just dont. Those "dont" moments are covered over in a variety of ways and thats just the way it is. I dont stress about whether its right or wrong because at the particular time i am not sharing its right for me. 🙂 ... View more

Hiya Iain The people who have helped care for me have felt exactly the way you have. It is different for everyone involved with someone who has a cancer diagnosis. In some ways it is more difficult for people who are caring, in that they often feel helpless and not sure what they can do to help the person that is diagnosed. This is just my perspective and i have cancer and just looking at what my family and friends have had to go through. Hope you can get rid of the anger soon, perfectly normal to feel that way by the way. Julie ... View more