About Jules2

Mrs_Elton

Hey Julie, thanks for the explanation, it made sense, no apologies needed! I find 'thingy' comes in very handy in a lot of my conversations!!! Jill.

caring_partner

Hi Kelly, I am so sorry to hear that your sister has passed away. Life can be so cruel sometimes.Sending love and best wishes to you and your family and thinking of you and hope you get through today OK. Gail xx

Jules2

Hey Reindeer Thanks for your input. yes it is great to take control where possible, i found it very empowering at a time when i had not much. That is great that you managed to keep working during treatment. Because of all the travel i have done with mine i have had to give up work for now and we do similar jobs believe it or not. THat does leave me in limbo a bit as i dont get tested till next year and i am one of the ones that obviously have had treatment (lack of hair..lol) and cant wear hats or anything because my scalp got so itchy (still is), due to treatment. So applying for a new job i would obviously have to address things that someone with hair doesnt have to address. Perhaps i need to adopt your motto "i wont know if i dont ask". Thanks!!

Hi all, I understand what you are going through Mel. Its really hard when everyone else kind of moves on and wants to forget about the cancer when you are the one who has to live with all of it. I dont think your partner is much different to mine by the sounds of it. I have struggled to understand how he can just move on from the cancer so quickly when it has changed our lives in so many ways, he never ever wants to talk about it. There are still days now where I get frustrated that he doesnt talk about things even when Im obviously living daily with the effects of the cancer & treatments. Ive come to realise that I can not get that from him and need to reach out for it elsewhere. It doesnt mean that he doesnt love me but its just too much for him. You can always get the support here with all of us and there are social workers you can talk to, basically take it from where ever you can get it. It takes a really long time to recover emotionally from what you have been through. When Im having a teary day (I have them often) I wait for my other half to get home then I lock the bathroom door, hop in the bath, turn off all the lights and just relax. I did this tonight as my legs were throbbing and I felt sad. Half an hour later I felt heaps better. I have another idea but will send you a message through our group now. Keep your chin up.

Jules2

Hey Journey We are having weird weather here, i was frozen yesterday and last nigt. Think having just finished treatment doesnt help in that regard. Looks like today is going to be a little warmer. Hope you have managed to stay out of the heat. :) Each cancer does have its unique differences although the basis of what we all go through is pretty similar. Course you have to add different personalities etc... into that. I did shave my hair off completely and have had a number 1 twice since then. My problem is that i didnt lose all of it, so am trying to keep the bits i didnt lose to the length of the bits i did lose. I need to have a number 4 again just to tidy it up. I cant do that till my skin on my neck heals up a bit. Has turned a bit for the worse and today i must go back to see the doc again. Sorry to hear of your unplanned surgery and hope that you are feeling ok after it. Its good to have a break between treatments, just to get our heads around stuff and give our bodies a break. Well, i hope you are having a great start to your w/e. I am off to buy some milk. haha take care Julie

Jules2

Hi blushn raindrop .... welcome to you. I dont have any experience with hodgkins but am sure someone on the site will have and hopefully they will respond to you. Cheers Julie

Dear all, PLEASE NOTE: A commercial post has been removed by the Administration Team as it breaches the terms and conditions of usage for the website. Kind regards, Felix Cancer Connections Coordinator

Jules2

Hey Linda Same with burning, my neck looks a bit gruesome at the moment and might have another staf infection i think. Had a swab done last night, so will see in a couple of days as to what is what. I bet you are enjoying being home. I am actually staying with a g/f at the moment as i live quite far out of town. Once my skin settles down i will go home to my house. The nurses dont like travelling so far out of town to treat someone, so is just easier this way and i cant be bothered to have to convince them to travel. :) Take care and hope your burnt skin is going ok for you Julie

deejjay

Welcome Milaroo, I hope that you have received some updated information on the planned treatment. I have a different form of cancer but have known of people with a similar cancer to yours and had radio active iodine treatment. I do wish you the best of luck and hope to speak more to you. Take care Deejjay

jules_jp

Kym, I hope you are feeling better today. Your world has been turned upside down. Your nearest and dearest can help only in their usual way. Only someone who has had prostate cancer can understand what you are going through. I found what helped me was lowering my expectations of myself and others, either by communicating/managing them - bummer I know (it would be great if someone could do this for us)! Initially, I had a lot of anger - I felt victimised by the disease - it ruined my holiday plans, my husband plans possibly my fertility and I was out of work. I wanted to be around people but on my terms not theirs incl my husband. It's about control and power struggle. It is really hard for people to see it that way because on the outside you appear ok. On this forum you can have a "whinge" with us - that's what we are here for because "we get it". Empathy is hard to find these days. You have been through a lot (and still are) so your feelings/reactions are a moving target and adapting to your new life. Some things will be same but you also need to see it as a time for change - eg. work hrs, alone time with your wife and spending quality time with the children. Perhaps you need some quality time for yourself.

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