December 2009
Hey blushn_raindrop,
Hats off to you for realising so early in this journey that you need to be honest with your feelings.
I am still coming to terms with it and we have been on the 'cancer' road since February!
Our loved one may have cancer in their body, we as partners/lovers/children etc have it in our lives. A diagnosis has a HUGE impact on everyone in the 'household'.
Best wishes to you both,
Mrs Elton
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December 2009
Hi Jo,
Friends can make us or break us some weeks!
I have struggled this last week in particular and consequently 'shut down' with most of the school mum friends I have. Just couldn't do the 'put on a happy face - everything is fine' act.
One friend in particular that I expected to give me support, just wasn't there for me. I felt very let down and actually started to grieve for the friendship that we once had.
I of course, was beating myself up about that as well and telling myself I should have made more of an effort.
Luckily for me, she 'came through' for me today, asked me how I was, invited me for coffee and then listened to me unload for the next 4 1/2 hours!!!
I feel so much better now that I have 'resolved' that issue.
Now...... if I can just do the same with all my other 'issues'!!!
Hope this week is a better one for you.
Jill.
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December 2009
Hi Claire-bear
Thanks for your reply. It is helpful to know that other people can relate and feel similar.
I hope that you have friends/family that can 'throw you a life-ring' every now and again and give you (and your family) some relief from the weight of this whole cancer experience.
Jill.
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December 2009
In November, Greg and I attended a 'Couples Retreat' organized by the Cancer council.
It involved 6 couples and two counsellors, we spent Saturday and Sunday learning about communication.
One of the activities we did on the Sunday afternoon involved a labyrinth, a path made out of paving stones (I would have hated to be the one who laid them) that wound around and around, you started on the outside and ended in the middle.
For me, the weekend had been challenging and frustrating, I had been looking forward to it as an opportunity for Greg to meet with other blokes some of who had cancer themselves and some who were partners. We didn't know it at the time, but his tumour on the brain was obviously present and was having a HUGE effect on his input.
The labryinth activity was the 'thing' I got the most out of the whole weekend.......I'll let you read and see what you think.
The Labyrinth
I enter the labyrinth, a winding path.
Others have entered before me, others will enter after me.
I have been asked to move carefully, reflectively. It is noisy.
I am too aware of the people around me.
My head tips forward and falls around my face, it is not a shield and yet is is.
I am following the winding path, turning, changing.
My shoulders are hunched, I worry that I am not 'getting it'.
Footsteps beside me, in front of me, all around me.
I don't feel comfortable, what am I doing here?
The footsteps are moving away, they have travelled the path I am on but are not so close to me now.
I breathe, I stand taller. It is not so noisy now.
I begin to focus, centre myself, consciously focussing on where my foot will land on the path.
I am curious, which way does the path lead? I raise my head and look further along the path. I am unsteady.
I am not balanced. I re-focus my eyes to the path immediately before my feet. I am balanced.
There is silence, those on the path ahead of me have completed their journey. Only one other remains on the path with me, they are behind me. We respect each other's space.
Qietly, meditatively we walk. The path is tighter, the turns come sooner. My balance is best when I focus just ahead of my feet.
I am standing tall and straight. Balanced. Breathing.
I have found its centre and in doing so, have found my centre.
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November 2009
Hi Mel,
Welcome.
Maybe there is something in the water/air at the moment, because I am really floundering at the moment too.
My hubby has 'the cancer' not me, so can't speak from that side for you, I am sure you will find this site helpful, it has certainly helped me on more than one occasion.
There will be someone 'out there' who has had similar experience to you and will be able to offer that understanding that you need.
In the meantime, go ahead and share whatever you are feeling with the rest of us, cos it's quite possible that most of 'us' have felt the same as you at some point!
Hope your day gets better.
Jill.
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November 2009
Hi Kym,
Therein lies the problem, I don't think people want to be around me because right now, I don't find smiling very easy.
Friends have already let me down, and continue to do so. That is why I can't reach out to them. I don't have the emotional strength to cope with more disappointment. I don't want to be hurt by them again.
So, the circle continues, I feel sad/lonely/hurt etc etc, I withdraw, people back right off. Just when I need them the most.
I haven't always been like this, and this is the biggest problem.... communication between hubby (Greg, not Rob - think you got me confused with Jo!!!!, no drama) and me is at an all time low.
He has cancer in his body, our boys and I have it in our lives.
Our family holiday was a total disaster. Hubby barely connected with us the whole time. He didn't swim with the boys at all, not that they needed him in the pool from a safety aspect, but they definitely needed him in the pool from a fun/bonding/holiday aspect!
Some R & R with him right now is a scary thought (which I truly hate to admit and am extremely sad about) simply because he is so unpredictable, the mood swings are intense, I don't mean I am scared he will become physically abusive - that is not it at all.
I just mean often even the simple conversations can turn ugly.
I am so concerned about his emotional well-being (not to mention mine!!) as he doesn't talk to ANYONE about how he is feeling/coping etc etc.
Really admire all you guys out there who are brave enough to put finger to keyboard and share with the rest of us!!
Also really appreciate the feedback and caring that I receive from everyone here. It really does help.
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November 2009
I feel like I am drowning.
I can barely take a breath before I am pushed under the water again.
All my energy, physical and emotional, goes to try and meet the needs of our precious sons. There is only a little left for hubby and me.
I am withdrawing again and even though I need them the most, friends don't reach out to me and I don't have the courage to reach out to them in fear of them letting me down again.
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November 2009
Hey Sammycat,
Good for you, it shows real courage and determination to do something like write in christmas cards when it is so deeply painful for you.
I have written a christmas letter each year since our sons were born, but haven't started this years letter yet. I just don't know how to start it and how much I want to say about Greg's cancer.
Most of the people I send it to will know about the diagnosis, but some we haven't heard from since we told them. I feel like cutting them from the list this year. There are some people who we only communicate with at christmas and I'm not sure whether I should do something separate or what. It's all too hard.
I hope that you and your grandfather can find a special way of remembering and honouring your Mum at christmas. Perhaps you can start a new 'tradition' with him. Whatever you do, be extra kind to yourselves, it is going to be so different and difficult this first time without her.
My thoughts are with you.
Jill.
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