Hi Hopeful, I was very saddened by reading your post. I have no words that could possibly make this pain or sorrow better. Such a horrible thing to happen and exactly - What the F@#K do u do now?? I can only imagine the pain you are enduring and have endured - to watch the person u love fade away. I guess you grieve and let that be whatever it maybe: sadness, anger, rage, happiness, relief, guilt, fear and acceptance. I hope and pray you find some peace soon and may your son be your light at this dreadful time. Ruby “Just when you think it can't get any worse, it can. And just when you think it can't get any better, it can.” ... View more

i just came across this post. It's funny how we need, at times, to give ourselves labels to try to make sense of our lives. BC, I predominantly classified myself as a teacher and wife and mother. Now I also see myself in terms of a survivor but ironically I haven't been able to do the survivor's lap at Relay for Life, despite having a number of friends who are involved in the event. I have only 1 more year to go to the magic 5 years and then I wonder if I really will think of myself as true survivor. Another observation- I am no longer definite about how I will feel in a year's time. 4 year's ago I would have been more definite about my opinions and views. i guess now nothing surprises me. One thing is certain - the survivor badge is one we certainly all earn. ... View more

If you google it there may be information about it in your area but of course it will now be for next year.At our event we had lunch,raffles ,speeches and free lawn bowls. We could wander around and mingle. The speeches were from an oncology nurse,a radiologist/oncologist,a research doctor ,a patient and head of fund raising,if I remember correctly.I actually became impatient when the patient was talking so I went for a little walk over to some stalls selling things. He was an old man whose story was so long because he kept embellishing every part of it with too many asides.The other speeches were interesting and informative. Never having played bowls before I was not very good but enjoyed it immensely. I think there will be more events in Australia as time goes on. It has been going in the USA for many years and it is celebrated in other countries too. ... View more

Sorry you have been sick. I'm glad you accepted my friend request. I think I have read about one or 2 people having their jaw reconstructed on another site. I suggest you ask in a blog here if anyone has had this. I realise it is a big thing. Meanwhile I'll look on my other sites and let you know if I find any information. The doctors probably know what's best and should give you lots of info but it is better to find out more so you can weigh it up .I do hope you make the right decision for you. It's your body and your life and you will have to live with whatever you choose.Are you talking to family or close friends about it ? They would know less than you but you need someone to talk to about it,I'll bet. Stay in touch and say whatever you feel . I was supposed to get the boipsy result today but it didn't arrive at my gp today so probably tomorrow. ... View more

Thank you for all your thoughtful and encouraging messages. And thank you again to everyone who contributed with ideas. Many of those were used. MC's (Midnight Cupcake) friends were fantastic and came to visit her regularly even though MC could not take part in their conversations and activities anymore. She just listened and smiled. MC's family is simply amazing. They packed so much love into the time they had left with her, spending each moment together. Just a few days ago they made a special garden under MC s supervision, using roses that share her first name. A friend said the following to me today: If this was always to be [MC's] destiny, she was definitely born into the perfect family. Without using the exact quote, her mum described her passing as beautiful, peaceful and spiritual. The sadness and loss will always be felt by everyone; but this beautiful girl will always have a special place in our hearts. With a heavy heart, Bee ... View more

thank you so much guys..we're still receiving emails, letters thru post, text messages and phone calls from people, honestly we don't know..and we're happy and overwhelmed, specially my beloved wife, for all these supports, prayers and thoughts..but yesterday i received from anonymous message telling specifically that my "sick" wife should not be granted the PR visa because she will "rip-off" the australian money!..again, i just thank him/her for the time he/she spent thinking of us ;-)... i explained that all the necessary expensive medical treatment and surgical procedures were already done and paid by our own pocket, and help from other individual and community BEFORE the granting of this PR visa..no more expensive treatment can "cure" my wife!..and even if my wife will gonna need this "free health access", it will be very minimal and my wife's tax contribution when she was still healthy was more than enough to cover her medical needs, if ever she's gonna need more palliative care..funny thing, out of curiosity, i ask the centrelink people if my wife can access any benefits, and she was told to "wait two years" before she can get benefits!!!..i just hope and pray that my wife is still with us by that time... just sharing to you what's the latest..but still, we are very grateful to all of you guys..thanks ... View more

Things are all ok here. Sorry I can't help you with info. Another site to try is Inspire .Make sure it's community health as there are business sites with a similar name.Please don't think I'm saying it's better. I'm just trying to give you an added help. Let me know how you find it ,if you try it. There is also the Rare Cancer Alliance as well.This may also apply to you .I do not know for sure. ... View more

I dont think I am scared of dying ... I had a bad accident 8 years ago, I lost 7 hours of time somewhere, but was told I was talking ok - which is weird as I never say things properly so Ken said he knew something was wrong lol I felt like I was watching things from afar & had no pain - so I have never been worried about dying since. Had major pain from when I can remember from 7 hrs later. I worry about losing out on the things I want to see happen. Our son (19) getting a girl & marrying or finally moving out lol. I want to enjoy the house we have just moved into (Our design) but at least I know I will enjoy recovering after my opp here. E Try to enjoy each day, what it has to offer & dont stress about the things we can not change Stitch ... View more

you could get them to colour you in with highlighters, whiteboard markers and different coloured tippex. photos? ... View more