Ah, the elephant in the room. I'm so glad you posted this! It needs to be talked about more, and I think couples, particularly young couples, need to be given advice about this.
My husband had chemotherapy in 2011. We were asked to attend an education session beforehand where we learned about physical side effects such as fatigue, dealing with bodily fluid spills safely, and dealing with dietary issues, but nothing was mentioned at all about the likely effects on our intimacy.
It was self evident that sex was not going to be on the agenda for the duration of the chemo (because of cytotoxicity and fatigue), but it was never actually talked about, which meant that I for one was not prepared for my bout of enforced celibacy, and didn't handle it as well as I would have liked to-I felt more like a single mother than a wife and got really cranky about the topic, which only made things worse. I was also reluctant to approach my husband for anything physical, because I didn't want to fatigue him more. I was quietly appalled when, near the end of the six months, while I was anticipating things getting back to 'normal', we were told there would likely be a six to twelve month recovery period! In the end my husband got his full energy back after about four months, and I realise that's pretty quick compared with some, but I still wish we had have been better prepared.
I haven't heard of any supports to deal with this issue. I've been a member of a support group for young adults dealing with cancer (I was 35 and my husband was 39 when he was diagnosed) for about 5 years, and the issue has never been touched on. Obviously it is deeply personal, but it is something people need to be coached through, or at least informed about, so they can plan for it.
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