Hi Anna I would love to grab a coffee with you but you will have to come up to North Queensland to do it! Sorry! You may have read on other posts that my husband has GBM for 8 and a half years now. He would feel very much in tune with you and your feelings I am sure. He can't do much these days but at least give hope to others that terminal doesn't necessarily mean very soon. Hope you are having some good times in a very tough journey ... View more

Wow Paul - you sound incredibly brave and focussed and I commend you for that. I think we need to be when we're dealing with any type of cancer really - face it head on! I share your frustration in that although your cancer is different to my husbands - they both do not have a lot of treatment options available to fight them by the sound of it - and when I hear of media reporting fundraising for breast cancer and bowel cancers I sometimes find myself wishing that the type of cancer we are dealing with was more common - and thus had more options to fight it with. Good luck with the fight and keep talking and sharing as even though we have different types of cancer to contend with we also share lots of similarities and frustrations to by the sound of it. Cheers Jodii ... View more

Hi Shannon, My dad who is 71 years old was diagnosed with Lung Cancer in 2007. Lucky it was only one small tumour & he had surgery to remove the lower lobe of his lung & there was no signs of cancer in any lymph nodes. In 2009 he had a seizure & they found a secondary tumour in the brain. This was successfully removed then followed by whole brain radiation. He coped very well with the radiation mostly suffered from fatigue & hives. He has had problems with his short term memory since the surgery. The long term side effects are that he has lost most of his hearing, balance with his walking and that's about it. At his last checkup last month i asked his doctor about the side effects & he told me that they really dont have any research as he is the 1 in 100 that has gone into remission. My dad never asked doctors throughout his treatment what the prognosis was. It was like he thought if he didn't ask they couldn't tell him bad news. Made me believe in positive thinking! It has inspired me with my battle with Lymphoma ... View more

Hi Mango WOW !! 8 years that is just fantastic !!! How wonderful :)you have put a smile on my face today. Thank you for your suggestions and I will have a look. Over my reading and research I have found that there isn't much "stuff" on brain tumours in Australia (or funding for that matter). Heaps on breast cancer and melanoma though which I have found interesting/ concerning. Again thanks for info Cheers Kerrie ... View more

Thank you everyone for your responses. ... View more

I went to last years forum in Sydney and personally got alot from it. Hope to get to this years event too. ... View more

thankyou for sharing this great news! it's so helpful to my spirit to hear a positive gbm story!... really go well! xx ... View more