Hi Brogsie, Hope you are doing o.k. and maybe have heard about the trial you want to participate.   I have never participated in a trial but here in the USA they are running advertisements about Nivolumab and Ipilimumab as a new dual therapy which surprises me in that my oncologist said she started giving it to her patients in 2014 so it has been around for a while put my doctor was always telling me "We don't know alot about the side effects".  I hope that if you qualify for the trial, the side effects are not too bad. Believe it or not, I have not had Chemo.  The SBRT radiation was really problem free but immunology was a different story but it prolonged my life.   I am noticing my doctors at cancer center are saying,  giving me more time, prolonging my life.  No more talk of cancer free which truthfully can depress me at time. I definitely would paint my toenails and nails black!  Here, the young girls call it "goth". Just no black lipstick. (ha!ha!).  Sometimes, I have my daughter paint my nails and toenails just to feel better.  Pale yellow is my favorite color. I am 69 and live in northern California about an hour away from our state  capitol, Sacramento where my hospital, cancer center, eye clinic and other clinics are all together. I do have been trying to get my ducks in a row too.  I get so overwhelmed at times with all that goes with cancer.  Just yesterday, we spend 2 hours traveling to hospital so I could get my Covid test as this is a requirement before surgery and apparently my treatment is considered surgery now.   I have it tomorrow and things have changed somewhat as now I am going to be put completly out and I might have to stay overnight in hospital.  This procedure is  something fairly new they are doing at my hospital now so I am slightly scared.  They didn't schedule me till afternoon and said plan to be there 8 hours!  My son is taking me and my husband, makes me happy husband won't be alone but because of Covid only 1 person can come in hospital with you.   I can see how happy your 2 little grandsons make you.   Sometimes it is hard for me with all the cancer details, etc. but I just have to try and really remember what is important. Thanks for listening and glad we are friends. Linda       ... View more

Hi @Annette46, How are you going? It's been ages since you've posted anything, so I'm just wondering how you are? I became a grandmother for the 5th time on the 30th January - another little boy. I get to meet him for the first time next weekend. I am very much looking forward to that. How is the bowling going? Have you been keeping yourself occupied? I hope you're going well Annette. Budgie ... View more

Hi NotaBergen Just wanted to say glad your treatment went well with good results.  Also, nice you had some time off from treatment and was able to enjoy it.   Here's to a successful new phase of your treatment. Cienna R   ... View more

Hi CiennaR, thanks for the update. Glad to hear that the cancer treatment has had such good results, fingers crossed your next pet scan shows continued success. Disappointing though that you are having to endure such serious vision issues, hopefully the specialist you are about to see can give you further hope of a positive outcome. Your comments on this forum will hopefully help others receiving this form of immunotherapy of what to be aware of as far as side effects go. I have been given every opportunity to discuss any concerns as they arise. The care we are offered really is second to none. Good luck for continued good results and thanks again for keeping in touch.   ... View more

Hi Thomthom2913,   You sound very well grounded & so are probably already doing what I'm going to suggest;  talk to your kids about the cancer, & be honest with them.  Even the very young will understand if you explain it well enough.   Most adults don't give enough credit to children in regards to how much they actually understand.     Cheers   ... View more