Hiya Teachers Mum Wow, i had a rarish cancer too which was also very unpredictable, so i could never be given anything concrete as such. It is tough doing the waiting game and we think we know what patience is all about? Reality is that its just a time thing and nothing much can change that. Reality is also that you are doing the right thing in voicing what is happening for you. I can just say it gets easier, which i know that at the moment thats no help at all! Julie ... View more

Hey Teacher Mum For me it was a time thing as so often all of this "stuff" (i love that word ... lol) is. Just be kind to yourself when you are coming up for a result try different things to get through the situation. I cant remember last time how long it took. I went from weekly checks to fortnightly etc... until after 3 years they didnt want to see me anymore. I just remember that it did pass with time. Sorry i cant be of more help and hugsss cos its not a nice phase to go through. Julie ... View more

Hey Versaillon I can feel your energy from reading your post. 🙂 Welcome to you and i wish you and your husband all the best. Julie ... View more

Hiya Judy I find i go through stages of being ok and determined about things and then i hit a bit of a brick wall. I try and limit my down town as in put a time limit on it and when it comes to the end of that time if i am not ready i pretty much kick myself up the proverbial and get on with it. I have just finished chemo and i was suprised at how well i tolerated it. One time i did get a bit sick from it and just mentioned it to the doctor and they changed the antesemetics and it was all good for the next one. Regardless of prognosis i dont think being diagnosed with cancer is easy on anyone. 🙂 Its a tough gig to travel at times and yet at other times i find rewarding, bit like life i guess! Hang in there re having chemo, just remember you dont actually know what you will be facing yet and can deal with if and when it happens. hugssss to you. Julie ... View more

Hi Lydia I remember when i first got diagnosed with cancer 21 years ago. It was tough when my life line of hospitals/doctors and nurses were being let go. IT was my security and had been my world for such a period of time it was scary not having all those people and resources around me. As time went on this eased and i was able to get back into life as it was ac. Thinking of you as you wait for results, its always a horrid time and sending you some hugs. Julie ... View more

Hiya Reindeer Thanks for such positive post that is perfectly timed. 🙂 I have been struggling a bit (psychologically) as my skin has reacted with only two hits of radio and i am very concerned as to how its going to hold out for the remainding 33. This morning i have been reading the camp quality website, or at least part there of and it is incredibly positive. So your message has combined with that to help put me back in the right place again. I have heaps of creams, all with no nasties in them and am not using soap on the site at the moment. I have an aloe vera plant that i am taking back with me (having to travel for treatment). Re the tiredness, thats made worse by cetuximab which i am having in conjunction with the radiotherapy. I have been reading up this morning also on potassium levels and it can be affected by cetuximab. I actually fell asleep in the car whilst being driven home on friday, something i havent done in about a lot of years. Was going to type how many but i dont like that number. haha! My taste buds have gone out the window and once again i think its the combination of therapies that is making things accelerate. So, am pretty much eating because i have to at the moment and some things i simply cannot tolerate such as mandarins which i used to love. Quite amazing how all of this affects our bodies and in turn our psyche. Time to dig deep and find new ways. :) Thanks again Julie ... View more

Congratulations grandma 🙂 ... View more

@ samex ... thanks, interestingly enough at the place i am staying at we have been talking about being kind to ourselves. It is a great concept and one we should remember i think. Thanks for the reminder! @ craftyone ... thanks to you also, i am trying to take each day as it comes and also be mindful of how bad it is going to get. Sometimes it is difficult to find the balance, somehow i manage it most times. @ sailor ... thank you oh wise one (not being a smart arse there), i have ten fingers firmly grasped on something. lol ... View more

Hiya Ruby, sailor and samex I just want to thank you all for sharing. As sailor has mentioned by sharing out stories helps others and ourselves in so many ways. For me its a little weird as i have yet to commence my radiotherapy and yet having had cancer previously i can relate to most of what has been said. I am a bit like a cat on a hot tin roof at the moment and not particularly wanting to start radiotherapy at all, common sense prevails and i will do it. In saying that it has been comforting to read all that you have written and i guess in a sense has taken me back to a time before in so many ways. So, thank you all once again and also others that contribute on this website. As someone else has mentioned, i also am glad i have found it. I have been mentioning to other people that stay where i stay about this site as all are country folk and it helps for them to have another means of support and quite often support that is offered in a unique way. Julie ... View more