GBM - is this the end?

[peanutz]

I hate GBM! Yesterday, my partner and I went to see his oncologist for the latest scan result. Bad news, after 4 rounds of TMZ, the GBM bounces back. We were told that he has: - 2-3 months if he does nothing - 6 months if he goes with carboplatine + epotoside - 9 months if he goes with carboplatine + avastin (at our own cost) Two months ago, his scan looked so promising. How on earth could it change to the worst in this short time!? Not sure what to do now.

[wombat4]

Live each day as best you can. Your partners quality of life is important, some of these treatments may prolong life for a while but the side effects may cause discomfort. My lovely wife of 40yrs decided not to continue after 48 chemo cycles in 2 yrs and they stopped having any effect. She went to sleep as I held her hand and told her I loved her. She felt no pain. when I go I hope it is as peaceful. wombat4

[Sunshine006au]

Thinking of you peanutz, such a nasty horrible disease, things seem to progress along nicely & then in the blink of an eye things begin a downward spiral my darling father didn't have GBM but I understand how rapidly this horrible disease can change so suddenly, sending thoughts your way. Alison

[exhausted]

Oh bitch, bum, buggar, bum, must be the week for it. My husbands mri has come back with the result of new growth. What can you say or think or do, just have a drink and a cry I think. So sad for you Nat and I understand how you are feeling Love Terese.

[exhausted]

Oh bitch, bum, buggar, bum, must be the week for it. My husbands mri has come back with the result of new growth. What can you say or think or do, just have a drink and a cry I think. So sad for you Nat and I understand how you are feeling Love Terese.

[peanutz]

Hi all, Thanks for the support. I try to keep myself busy with researching now. That's the only thing I can do.

[thaker]

Hi. For as long as you have options it is not the end. Having said that though I agree with wombat4 - live each day best you can. While you are chasing down options to give your partner more time dont forget to cherish the time you have right now. I lost my husband to GBM in 2009. It was only when his tumour recurred that we decided it was time to build up the memory bank for our girls. We continued our fight against this dreadful disease but also started spending more time getting the most out of each day. Unfortunately with this disease things can change very quickly so cherish today.

[thaker]

double post

[joyptl]

Nothing to do except as much as time with your loveone and constantly praying to Almighty. That is the only one option to heal your pain and your beloved kin either... I still cry whenver my beloved father,55, passed away before 1 months with terrific GBM....He left this earth from my hand, when I sat him for splitting from bed, and I couldnt believe he left me alone in this world. It was a journey which, perheps, is sent to anybody to examine or persistent by God. Every night I including family member see my dad in dream.... I pray for all patients who suffering this dreadful disease...and have a peaceful sleep without suffering excessively..

[maddie86]

oh im so sorry this sucks.. your story is similar to mine.. my beautiful fiance was doing so well after being diagnosed with advanced bowel cancer... chemo, radiotherapy and 4 major operations later he was almost all clear.. until a scan before xmas revelaed this horrible disease was back in his liver, lungs and lymph nodes.. he got told if he did nothing six months.. with chemo 9-10 months.. we refuse to kinda believe it and he's taking multi vitamins and trying to eat better alongside chemo.. a recent scan showed no new growths which is posative and lymph nodes have shrunk.. i fkn hate cancer its just not fair!

[joyptl]

HI Maddie... I pray for your loved or you in morning pray to give your presistence to fight this evil. As I wrote try to spend as much as time with him....dont be upset or tired to serve him at whole night too; and try to live around kin that excel to moral support for your family. And last thing, Just pray pray pray pray pray,,,,,to God; whatver you belive, if not, then plz have faith on him

[Groenevelt68]

Hello, My husband was diagnosed with GBM in June last year. He opted for surgery, along with radiation (6 week course) and chemo (temadol, 6 week block and then a monthly course). In Sept last year a small mark was noted, then in Jan due to slow progression in size was decided that it may be a side effect of medication, then in March this year at the last MRI the small mark had tripled in size to become another GBM. Now we are waiting to hear from hospital for surgery to be booked and start radiation in April. With the first GBM we were told with removal and treatment a life expcetancy of up to 24 months looks good, now we have been given similar stats as peanutz (3 months if nothing done, 6 months if surgery is done, 9 months with surgery and treatment). Since the diagnoses I have been writing a daily journal (at first it was due to doctors asking us to document for medical purposes and now I write everything from medical issues to how our day was). We try and go out as often as we can, we have family days when it can be arranged, even had a photo shoot. We continue to remain positive but also know that life is something we borrow, at first I was very upset that I would loose my soulmate but then realised that we all will pass in time from this world and take all opportunities to spend time with my husband for the time he has left.I look at it that at least I know that he has precious time left, where as if this had not happened and our world was without cancer does not mean that life would have been perfect as life can be taken so fast that we could miss the opportunity to say I Love You, or take back that word or action prior to losing our loved one. Peanutz:- the younger the person the better the chances (my husband is 60 and is on the borderline for age), an adult in their 40' has a better chance than someone in the 60'. GBM is very aggressive, and due to the fact that there are more than one type of cell which makes up the GBM, it makes it harder to get rid of as more than one treatment is required. I am wishing you all the best.

[rarsie]

Hi peanutz, I find the researching a friend even though it shows you how aggressive this cancer is, but I feel I deal with anything if I know and understand what I am facing rather than be ignorant. It is so much easier to speak with Docs and such if you know what you are talking about, and who knows maybe down the track we maybe able to use our knowledge to help others going through what we are. Keep researching All my thoughts are with you Sandra