Blogs - Page 101

Yesterday was our 1st oncology visit since radiation finished 3 weeks ago, we are about to start on a new course of action with Temodal and Procarbazine. Feeling very anxious with the thought of all the foods and drinks that he can't have for the next 3 weeks. I am hoping that it really doesn't set him back emotionally as he has always had such a great attitude. May seem insignificant to others but the fact that he has still, up until now, been able to enjoy a couple of his homebrews has kept some normality to his life.

I am grateful for getting cancer. My cancer journey was tough. I look back on my journey and am thankful for the experience. It is a tough thing to be able say “I am grateful for getting cancer”. Being able to say it has helped me move past it and enriched my life, I haven’t let something hang over me and hold me back from experiencing anything. It may be controversial but I wouldn’t have my life any other way. The journey I went through has moulded and shaped me into who I am today. Being diagnosed with cancer has helped me develop to be grateful an inspiration powerful

So there was no sign of side effects and away I went to Canberra at Easter. The weather was wonderful and I delighted in the sun. Plus the 18 music venues with music 18 hours a day. There were lots of logistical complications about the trip including needing to do a return flight to Melbourne to have scheduled scan. But after that we had 3 days of relaxation, travelling down the east coast back to Melbourne.

My heart is breaking, I lost my Mum 11 days ago after nearly a 12 month battle with pancreatic cancer. I dont know how to cope and am finding daily jobs impossible. I have to go back to work tomorrow and am not looking forward to it at all. My girls went back to school today and my 11 year old cried all morning getting ready. I feel so empty and nothing feels right. People keep telling me it will get easier and that at least mum is not suffering anymore. I just want the pain to stop 😞

Have missed every other one because we didn't hear about them until afterwards, so taking a big step to attend this one and hopefully meet some fellow travellers and get a bit more hope for a future without deadly brain tumours. See some of you there!