Hi antt00   so sorry to hear your story , there is lots of good information which may be very helpful for you on cancer sites and people who would be a great support for you.  so sad for your son, do you have any family at all that could help you  I just came home from hospital today  and not good news  I know I’m not managing my situation well and should be seeking lots more information, but I think it simply overwhelms you There are some good contacts on this site and I hope some reach out to you Stay Safe and try to keep smiling  ... View more

Hi antt00 So sorry to hear of your advanced cancer, what cancer do you have, your so young so of course very overwhelming for you, everyone is different how they deal with this diagnosis, I have my husband who is my support and he is all I need, I hope you have someone to be by your side, take care ... View more

Hi seumus good to hear your going well , without doubt there is depression and anxiety involved and I know I get very anxious and no doubt depression is involved, however I am content with what I won’t go through, I’m happy to have a stent more long term and will go through the six week chemo, I’m neither positive nor negative I always like to sit in the middle as I’ve always found this the perfect seat to be in, as the disappointment with never overwhelm you  good luck on your journey and always happy thoughts  ... View more

Thanks Myke49   for reply, good to hear your going well, my doctor would prefer me to have surgery, however not an option I want, so only other option, chemo which I will do, major concern is right ureter will start to close, I only had stent out in September but if it means a stent again happy to go with it. good luck going forward  ... View more

Hi Myke49   Hope all going well and you are well, I have bladder cancer and like you left ureter and five tumours although not muscle invasive I am high grade which I had a stent in to keep it open, unfortunately I have not come across any female bladder cancer patients on here, I have had 12 rounds of BCG  immunotherapy treatments and five cystoscopy since December, my only options is major bladder removal surgery which I will not be considering and chemo which will have no side effects as directly into bladder, which is my is suitable will start soon,  I am well my only effect is I tire each afternoon  wishing you all the best with your recovery      ... View more

Hi  you have been on a health journey, and like you my cancer journey and treatments has been pain free  although I still believe cancer sucks  your faith has been on your journey and I know prayers from afar have helped me  my good wishes with you on your journey  ... View more

Hi seumas I understand your dilemna, although my cancer very different and no family history, I have bladder cancer, I have been through 12 rounds of BCG immunotherapy treatment and my only effect from treatments or having cancer is I get tired every afternoon, and now I’m at the stage my options are chemo which I’m told should have no effects or major bladder removal surgery, I am happy to go with nothing, and like you my family say it is my decision although my husband would like to try the chemo which I will do for him, however my bladder may not be suitable but will find out in a week or two, good luck with your decision  ... View more

Hi David  major surgery with bladder removal is my urologist preferred option now, however not a path I want to take. Chemo is only the first choice for muscle invasive bladder cancer, BCG immunotherapy is definitely right way to go for non invasive, it worked 99% for me and my team were so happy that it had worked so well for my ureter. I have no pain and are well and more than happy to do nothing, but will do the chemo, more for my husband  questions!! I never know what to ask  thanks for kind words and good wishes to mum  ... View more

Hi Susana  thanks again for your reply I am not sick in any way, other than I get tired in the afternoon, and a reason I would like not to have anymore treatments however I am high grade with two options chemo or preferred option bladder removal, at this stage I hope the cystoscopy gives the go ahead for chemo 👌🏻 ... View more

Hi David  sounds like your mum and I are on similar journey I was very fortunate as when I first saw gynaecologist I was sent to urologist. I have been on same treatment plan two rounds of 6 week BCG immunotherapy, 12 treatments,  my cancer is only in bladder but I had cancer at edge of right ureter so have had a stent, after my last cystoscopy surgery stent taken out, I am seeing a professor at end of month and will start chemo, but this will all depend on another cystoscopy to see if my bladder ‘is suitable’ as I had cancer in ureter and I still have a tiny tumour on edge of lining I am high grade and the preferred option by doctors is bladder removal, a path I’m not looking at, hopefully  the chemo will be suitable first    thanks for your kind information and good wishes to your mum so good to hear about another female  ... View more