Norman 1 Gain as much information as you can from your own research to help in your decision making,Also confidence in your medical team helps,but don’t be afraid to get another opinion.     ... View more

Well done ,all the best with recovery 👍 ... View more

Hi salyce  My pain is still there ,a small price to pay for being alive,I haven’t had nausea caused by Whipple for many many years,Take heart we know the pain is there,but the medics doubt it unfortunately,I wear an elastic back brace with aluminium stays very light,it definitely helps me and my Whipple pain they tried a nerve block no change,I wonder if similar support may help you also.   Keep chasing them on the nausea,I take creon infrequently depending on my needs. good luck . ... View more

scarlet834 Hi I hope the news from the biopsy is positive for your husband weight loss and fatigue,can be a symptom,I had surgery for head of pancreas ,not the tail many years ago,it was successful for me,Poor chap having Parkinson’s symptoms,they can sometimes be caused by different meds,I hope that is the case,my wife has Parkinson’s ,the hard part is the waiting on a definitive diagnosis for both illnesses,yes you can find support on a forum,my experience is not with the tail but very similar surgery.best wishes. kj ... View more

Darlinnay Great ideas for helping food intake,and also the quantity to start with. kj ... View more

Hi Mark Apologies I should have wrote it is your wife’s body and her choice ,you used to be able to modify your post when you made a mistake in answering however you can’t now. ... View more

I believe it can be easier for delivery of chemo and other benefits ,instead of constant needle pricks with iv in hand or arm catheter,Have an discussion with your oncologist asking the pros and cons ,then make  an informed decision yourself on what you are most comfortable with it is your body,I didn’t have a port but got tired of the constant trouble of finding a vein to take the iv catheter..   ... View more

Hi Rodrigo I started chemo 2 months after Whipple ,as I needed prostate surgery before starting chemo,which wasn’t cancer related,I don’t recall my CA19.9 but before surgery I needed a stent put in as my levels were high,The longer Gemcitamine chemo went the sicker I became from the effects ,my oncologist dropped the strength a number of times so my body could cope,but we all respond differently to the chemo,I believe it is not as strong or as harsh,as the other treatments ,a friend who had a Whipple at a similar time as myself had the same chemo and got through without any problems,12 months later she needed folfirinox,and had side effects,that chemo has more effects on the body ,from my experience of talking with others who were on it,it’s a good start your Mums  is not metastatic.   Folfironox has more potent side effects and was usually used later in the disease if needed,but that was many years ago,my oncologist 12 months ago said to me they now treat pancreas cancer differently now with chemo,when we talked about the newer ways of treatment.   You are so right you can’t afford to give this cancer any inches or time to come back.   I can’t say what my CA19.9 were after surgery as I had severe complications after my Whipple in hospital and was trying to recover from what happened.I do have CA19.9 testing every 6 months ,currently my reading is 17.A CT scan was used regularly to check on my progress as well as CA 19.9 tests Because of Covid I haven’t had a Ct for over 12 months,I do know what to look out for on a reoccurrence ,so I am vigilant but not over stressed.   I believe many factors can influence a CA19.9 reading ,so fingers crossed that it’s a temporary rise in your Mums ,hopefully whatever chemo is chosen for  your Mum it works on cancer cells if any are left,and that the side effects are not too harsh on her.     I send my best wishes to you and your family in the fight against this disease.My knowledge is limited but if I can be of any assistance just ask. kj ... View more

Hi Rodrigo 1111 When in my sixties I had Whipple surgery for cancer in head of pancreas followed by gemcitabine chemo 12 years ago,I survived,There are a number of different chemos available for your mum,as to how her body responds to the effects you can’t tell until it’s taken,I’m not sure if they use a very strong chemo before the metastatic stage as there are guidelines on there use,I was sick from chemo but the results are there for me,   During my cancer journey I met  12 people with This cancer in the-head and one with it in the tail,only 3 of us could have surgery , so that’s a good start for your Mum,following up with chemo is the best chance of survival,getting in early if there are any cells left,That’s my humble opinion,I was told after surgery the cancer was in my spider veins and the surgeon couldn’t remove all ,During treatment I was told I was terminal but obviously the chemo helped mop up the cells, Have a robust discussion with her oncologist for their thoughts .   I wish your Mum all the best in her decision of what is the best way for her to make this decision on her treatment  Yes their is no guarantee of success,but surgery and chemo are the best chance forward .my chemo strength was made to how I was physically at the time to enable me to get through the treatment sometimes strong sometimes a bit weaker. good luck kj kj ... View more

I didn’t feel like food for months,Imy weight went from 70 kgs to 51 kgs,I’m now 62 kgs but it took a very long time to increase,like you I couldn’t look at food but took hospital sustagen smoothies with a banana blended in for sustenance.my wife has nausea caused by a neurological illness,she takes Domperidom for the nausea it helps ,ask your drs it possibly may help you it will get better over time very small meals and water,fingers crossed you improve over time. ... View more