May 2021
Thanks for your email @stirling 👍
If you wish to delete your account @Anonymous, can you please send an email to onlinecommunity@nswcc.org.au and I'll pick it up.
Cheers,
Kate
Cancer Council Online Community Manager
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April 2021
1 Kudo
Feeling worried or anxious about breast cancer returning is very common for people who have had breast cancer and can impact on day-to-day activities and planning for the future.
Researchers from the Ingham Institute of Applied Medical Research, University of New South Wales and University of Sydney are doing a study with the Cancer Council to see whether the interactive online program, iConquerFear, is a useful and practical tool for helping people affected by breast cancer manage fear of cancer recurrence.
Who can participate in the study?
You are eligible to participate in the study if you are:
18 years or older
Have been diagnosed with early breast cancer
Have completed hospital treatment (i.e. surgery, radiotherapy and/or chemotherapy) Please note – you are eligible to participate if you are currently taking hormone blocking therapy (e.g. tamoxifen, aromatase inhibitors)
Have access to the internet and an email address
What does the study involve?
If you decide to participate in the study, you will be invited to use the online iConquerFear tool over a 10 week period.
iConquerFear has 5 modules in addition to a welcome module and contains written information, interactive exercises, audio recordings and videos of a woman living with breast cancer reflecting on her experience of fear of cancer recurrence and how iConquerFear has helped her to manage. It takes 1-2 hours to complete the activities within each module.
A member of the research team will phone you one week after you start to help with any technical issues you might experience.
As part of the study, you will be asked to complete three online surveys – one when you first sign up to iConquerFear, another 10 weeks later, and a final survey three months afterwards. These surveys will take about 20 minutes each and will help the researchers understand how well iConquerFear is working.
Any research findings that are published will be done in a way that does not identify you, so your use of the iConquerFear tool will be confidential.
How do I participate in the study?
For more information and to participate, visit the Study Website.
If you have any questions, please contact Dr Ben Smith, Principal Investigator, by emailing iconquerfear@unsw.edu.au or ben.smith@unsw.edu.au.
Thank you for considering this opportunity.
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March 2021
The Victorian Comprehensive Cancer Centre (VCCC) is hosting a symposium for people affected by head and neck cancer, around intimacy and sexual health.
What's it about?
The increasing incidence of human papillomavirus-associated (HPV) oropharyngeal cancers has seen some patients report on the challenges in the resumption of sexual activity and intimacy following treatment, with feelings of guilt, resentment, or blame common among patients, and within their intimate relationships.
Hosted by Professor David Wiesenfeld (VCCC Research & Education Lead for Head and Neck Cancer) and Dr Lachlan McDowell (Consultant Radiation Oncologist, Peter MacCallum Cancer Centre), this symposium will provide a better understanding of the importance of sexual health to survivors and address common HPV-related concerns in the clinic, whilst mapping the referral pathways currently available for sexual dysfunction treatment.
When: 30th March
Time: 4:30pm-6pm
Where: Online
Registration is free, here via EventBrite.
Please find the program attached for your information.
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March 2021
Cancer affects not just the person with cancer, but also affects their carer, family members and friends.
As a carer, you may find you are so focused on your support role, that you may not realise the impact it is having on you or even neglect your own self. It is important to remember that your wellbeing matters too.
Who is this episode suitable for?
This episode is suitable for anyone in the role of caring for someone with cancer. This episode may answer some of the questions you have been may be thinking about, as well as where you can seek further information and support.
Who is in this episode?
In this episode of The Thing About Cancer, host, Julie McCrossin, talks with health psychologist Dr Ben Britton.
Dr Ben Britton with Julie McCrossin
You can find out more about this episode here.
If you're having difficulty listening to this podcast or want to find about listening it on your phone, head here.
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March 2021
Morning @Betty,
I hope you are well this morning ❤️
You may like to have give our Peer Support team at Cancer Council a call, and have a chat to them about our Telephone Support Groups on 1300 755 632.
We have a telephone based support group, specifically for people who are caring for a loved one with cancer, and I think either this or perhaps something like counselling, might be a good option for your Mum at this time.
-Kate
Cancer Council Online Community Manager
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March 2021
Look Good Feel Better is back for 2021!
Look Good Feel Better, is a community-based service program that is run by the Cancer Patients Foundation and supported by Cancer Council Western Australia.
The program aims to improve the well-being and self-image of people diagnosed with cancer.
Using a relaxed, workshop setting, trained volunteers work with clients, teaching them how to manage the appearance related side-effects that can be caused by cancer treatment.
Current planned workshops and locations are as follows:
9/3/21: Joondalup
13/3/21: Nedlands
22/3.21: Albany
24/3/21: Nedlands
27/3/21: Shenton Park
30/3/21: Subiaco
Registrations are made by contacting Look Good Feel Better on 1800 650 960 or take a look at their website to find a location near to you.
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February 2021
1 Kudo
Hello everyone!
Hoping you are all well this morning 😘
I just wanted to let you know that we have launched a new group for people affected by Head and Neck cancers. This is being facilitated by a head and neck cancer support nurse coordinator and the team here at Cancer Council. This group is closed, so your discussions will be in a safe and enclosed area of the community.
To request access, do the following:
Find Online Support Groups in the menu if you're on a mobile device, or using a web browser, you will be able to see it in the menu at the top.
Locate the group titled "Head and Neck Cancer Peer Support Group", and click that link (it is 2nd in the list of groups from the top).
Click the blue "Join the group" button.
Myself, or another member of the team, will then approve your access during work hours (Sydney time). I just realised I'm posting this on a Friday, so I'll keep half an eye on it over the weekend. Just bear with us 😀
Cheers and happy posting!
-Kate
Cancer Council Online Community Manager
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February 2021
Afternoon everyone!
I am just bumping this thread to check in and see how everyone is doing! We miss seeing your friendly faces about 😘
Hoping everyone and your families are doing well, it's been a challenging year or so for everyone.
-Kate
Cancer Council Online Community Manager
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February 2021
Hello @Belinda58 and welcome to our community!
What a long wait, I am sorry to hear that 😥
Have you now been able to get in touch with your surgeon and find out more details and/or dates?
-Kate
Cancer Council Online Community Manager
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February 2021
Morning @Vee21 and welcome to our community ❤️
Sorry to hear of your sibling's diagnosis!
You or other members of your family may be interested in having a listen to a few of our podcasts, such as making treatment decisions, family dynamics and cancer, and how to help someone with cancer.
I'd also recommend readingTalking to your doctor andMaking treatment decisions.
Has she had any further tests or updates about her treatment as yet? Please remember, we are here for any member of your family who may need support 😘
-Kate
Cancer Council Online Community Manager
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