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Hi Peanutz If there is treatment you can't afford you could always try applying for it to be given to you on compassionate grounds. I don't think you are guaranteed to get it but it wouldn't hurt to try. Thinking of you Julie ... View more

Thanks Suzie. 🙂 ... View more

Our fingers are crossed with u and ur husband peanutz for a successful scan and many more months and years of living. I love to hear when somebody outlives their "prognosis", it gives hope for me and I hope it gives others hope too.... Good luck to u both 🙂 ... View more

Hi Peanutz, hi SILLY and Pamela It all sounds so confusing and frightening and stressful and plain overwhelming... I feel for you. There's nothing I can do or say to take anything away.. We can only hear, listen and read your posts. I think it's accurate to say too that there is a collective nod that goes on here; many of us have been through the chaotic horror and would take away the pain from another person if only we could. Counselling can really help to slow things down and provide support through the fury (the "What world are these people in?"), but, understandably, you probably cannot imagine having time or headspace to fit that in right now, your focus is on the "doing", the practical. Think it's called survival mode. Keep going, you have support here. Kind regards, Sarah ... View more

I am travelling at the moment and was able to get cover including my pre existing through CoverMore. Costs a bit but I thought it was worth it. Cheers Rikki ... View more

I hope the palliative care team can help make your life and your partner's easier . I don't know anything about the Cenrelink help or respite care but I suggest you do get in touch with them to find out if they can give you any assistance . All the best . ... View more

"With the chemo he needs 8mg for 2days then 4mg then down to 2mgs." I think you mean Dex and it's interesting how your partner takes it at different doses depends on the chemo schedule. What chemos is he on? My partner is always on the same dose and his dose depends on how he feel or what the scan is like. ... View more

Thanks Storm for your supportive comments. What we wouldn't give to change this but we can't. You are at the stage we all dread and at the same time hope for expediancy. It is the ultimate gift of love to give someone permission to "let go". Everyone has to move on in some way. Good Luck and Peace Sending you love D ... View more