Hi Peanuts, you're not alone in your despair, there seems to be a lot of people that I come across these days who express the same feelings, ie, that people more and more just don't care. Some people on the other hand don't experience this. I'm still trying to figure out the discrepancy - maybe people are just too busy these days and stressed with morgages and car loans. I sometimes ponder that people in the medical industry get plain sick and tired of being faced with pathetic sick people all the time (mind you, it's not all of them). Don't stop leaning and expressing your 'stuff' on this site, it's here to support you and your partner. You need all the support you can get in this time. Sarah. ... View more

Hi Pamela, I don't know what to believe and I don't pray but I do appreciate your prayers. Thank you. ... View more

My husband has a Grade 4 GBM has had 2 craniotomies in 5 weeks. He is 62 and was a fit healthy man & had 3 seizures, the first one beside me in bed at 3am. the next while the paramedics were on hand then another on the way to the hospital. The total shock of all this rocked us all & we live in CQ & have spent a great deal of time since July 13 here in Brisbane. He is having chemo orally & we are heading into our 5th wk of radium next wk with one to go before we head home. He is a champion, never complains but his short term memory is shot to pieces & lacks concentration at times & also gets snappy at me over little things but is fine with our daughter when she visits. we know the long term prognosis isn't good but it is frightening to know what lies ahead. this is such an emotional time for me as his carer & I try to keep upbeat & happy with him but I have my cries alone. I hope your mum can cope with the mood swings & we must remember this is not the person we had prior to this dreaded disease. ... View more

I am sorry that you are having such a bad time . ... View more

Hi peanutz, yes it is easy 7 hours away, yes and the doctor gets the authorisation then hands me the tablets, we fly to and from which is only 2 hrs each way but my argument and may I say the local doctor here is the expense for Q Health to fly 2 people to and from would it not be better if the tablets were given out here as he has the Brain Tumor Ongoligist in Brisbane who we see every 3 mths. Cant see the point when every one would gain especially us as we then have accomadation expenses and so on cheers rarsie ... View more

For my case it was a long time before it was confirmed as cancer. First ct scan on 20/02/12 was told found lesion in lung which appeared to have malignant markings. First biopsy of lung lesion on 28/02/12 gave inconclusive results, they were hoping it was fungal so waited 4 weeks (totally nerve racking time). Pet scan on 12/04/12 told results would be a wk. Called on 13/04/12 to urgently come in for needle biopsy. 17/04/12 informed 4 hotspots on pet scan, needle biopsy of lung completed. 20/04/12 called and told "u have a tumour, this tumour is malignant, u have lung cancer". Left upper lobectomy on 21/05/12. Informed stage 4 metastasis nsclc on 21/06/12. Started chemo on 28/06/12. I would say it was the date the drs said in black and white "u have cancer". ... View more

Hi Nic, We only go to Toowoomba for the Chemo Tablets every month he see a indian doctor nicknamed G.D and go to the P.A. in Brisbane for the MRIs and brain tumor clinic and see Sarah Olsen. Q. Health flys us to Toowoomba and Brisbane but we are hoping to do telly link with Toowoomba for Chemo and have it sent here after seven months of having to go there every 23 days is a bit I AM OVER IT Did you say your son lives in Wondai too???? Cheers Sandra ... View more

My daughter said the other day "do you remember what Kep my son (GBM suffer) was like before he got cancer" and my reply was "no it seems like its been here forever everything in all our lives have changed" rarsie ... View more

Hi Rain76, Sorry to hear about your husband but thanks for sharing. I sort of want to know things that could happen in the future so I can look out for all the signs and be prepared. I can't imagine how hard it must be for you but I hope you still have some good times together. In a way, it's good for him that he doesn't really know what's happening. It was quite hard for my partner when he couldn't speak for nearly two weeks. That time he knew and was aware of everything. He understood things people said to him but he couldn't speak nor write. What came out didn't make sense and sometimes sounded like he didn't know how to speak. The notes that he wrote are all cryptic. He was locked inside his own body and was very depressed. I know it's nothing compare to what you and your husband are experiencing at the moment and I have no idea how to cheer you up. I hope this journey is not too hard on both of you. Big hug for you Rain. ... View more

Sandra - I'll keep you post on how we go with Avastin. ... View more