Hello there. This is Norway calling 🙂 Well I didnt have the same cancer, but I understand your question, and I dont think it is a correct answer about how much you have to ask and how much doctors tell. I think that is various there as here. Some tell alot, and other dont tell anything. Some speak over the patients head, and some speak a language we dont understand. I did a thing I regret today. I recearched everything I could find about my lymphoma on the internet, so I could ask questions I actually didnt like to know the answer on. Sometimes my doctor who was a spesialist for lymphoma said to me, "you know more than me sometimes". I had no Idea, that some websites I was visiting was meant for oncologist, and not for us, so I got to know how little chanse I had to survive. I got to know that the illness I had was known to get back, so instead of enjoying the last 8 years, I have in fear been waiting for the cancer to come back. They sstill say I am in remission, but it is 8 years since I was ill, so I like to know that I am a survivor. But prommise me. Dont ask them for answers you dont think you dont want to know. I have alot of sideeffects, and they have affected my life, but I am sure that I would have had a better last 8 years If I didnt knew what I knew. I have been so afraid every check up. Every time I have been sure about that this is the time they gonna tell me that it has come back. My doctor told me that I shouldnt worry before it is a reason for it...well that is easier said than done... I am a person who worries alot. I didnt think I got to see my girls grow up. They was below 5 and 11 when I got ill, and now they are 13 and 19 🙂 Still I am some in the hospital, because of sideeffects from treatment. I had Highdose chemo with autologus stemcell support, and that means I was myn own donor. They didnt think it would work, but they didnt have another option, because with the treatment they used to give, they knew for sure that it would come back...just a question about time...so they tried to trick the cancercells by giving it more intensive. They didnt think it would be such a good Idea, but here I am. They call it remission, so you see that is something who wil be different for each illness. Because as soon as you are showing sign of beeing better, you are in remission. I am a survivor. Wish you the very best on your check ups. And remember, it is not more normal to know alot than little or nothing. Evrything is normal. Hugs from Norway 🙂 ps! because of High grade of Fatigue syndrome from treatment, I have problems with consentrateing, so hope you forgive me3 for writing so long message.
... View more