Hi Mignon & Wombat, well my dad is such a fighter, he made it thru another close call...at the moment dad is still having some probs with his breathing but other that that he is ok, all his stats are good,ie - Bp,bloods,kidneys, oxygen lvl still a little low at 87%. On Tuesday when dad was getting over the acute attack his team of Dr's met with us & asked dad if his heart stopped does he want to be resusitated, he wrote down YES... That evening mum was still at the hospital & I had left to go home, have a shower & something to eat, I called mum to check how things were & I could hear a woman yelling at my dad, I asked mum who she was & was told a Dr from ICU, I asked mum to put her on the phone, I asked who she was & why she was yelling at dad, she said she was the Head Dr from ICU & that she was telling dad that he will not be resusitated & that he is very tired & it was time he went to sleep & went to heaven. I hung the phone up & raced back to the hospital.On arrival I demanded to speak to this female Dr, when she arrived she had 2 security guards with her, we went into aprivate room, she had her guards & a male nurse with her for morale support, I asked her why she had the guards & she said that she knew I was angry & that she didn't know whaat to expect !!!! I asked her what right she had to go into my dads room & start yelling at him about something that had already been discussed, she said that he had been fighting this illness for 5 months & he is tired & someone has to tell him that it is time to stop fighting & go to heaven...I was so angry, I asked her why she thought she had the right to play god, also we had already had a meeting with dads Dr's & we had all made our choices clear.I asked what her position was & she said Head of ICU for the night, she also said thatICU is not to be used to sustain a life or give a chance to someone who will end up in a nursing home.I am appalled at this woman. I am in the process of putting in a formal complaint to Hunter Area Health. My dad is afraid to sleep in case he becomes ill & noone will treat him, we are afraid to leave dad alone fearing if he has another attack nothing will be done. I am so ANGRY !!! ... View more

Good on you for a fighting spirit. ... View more

Thanks Silly It all seems to be going well, dad is very sore but it is amazing how in just 48 hrs things have changed. They didn't do the tube with the pouch they actually put the tubes into the saliva glands & they then go into another tube that directs all the secretions down into dads stomach. Dad is hardly coughing now & there is no more secretions soaking dads shirts (we were constantly changing dads shirts due to them becoming soaked in a matter of hours) Today I took dad out in the wheelchair & we sat in the sun, it was lovely. Cheers Alison ... View more

Thanks Carrie, we had a meeting today with the Dr's & dad isn't reaponding too well to the treatment, to be honest it was almost like they wanted me to tell them to turn the oxygen off & let him pass away, I'm struggling at the moment I don't know how much more I can take, my por mum can't handle things so it all comes down to me, I'm having a bad day & getting that news just tipped the scales, sorry to vent to you but it does help to get it out.. Happy New Year 🙂 ... View more

hi Neen, how are you? i hope you are home now and doing well. It is going to be really hard not having much contact with ben, as he is very cuddly, im going to miss him, whilst in hospital :-(. I have been away for a few days camping, so that has been really nice, and has totally taken my mind off it all. anyway keep me up to date with your progress. take it easy xxoo lynne ... View more

It's terrible when one of your loved ones is diagnosed with the dreaded "C" word, this site is fantastic & very supportive. :) ... View more

Hi Joy Thanks for the info, I will give them a call tomorrow, I just find that when I am talking to dads Dr's it just doesn't sink in....at the time I think "ok I have to remember that" but when I walk away it's gone...I'm so confused & god only knows how dads feeling...Once agian thankyou for the info. I will let you know how I go after the call. Many Thanks Al 🙂 ... View more

It is a heavy load & very hard to stay strong, I find myself always thinking how my dad must be feeling, almost every day the dr's say different things but I always tell dad "stay positive" my darling dad just shakes his head....Tonight when I was visiting him at the hospital it really hit me hard, I walked out & cried all the way home, I'm just waiting to see what happens when dad comes home, I go back to work on Monday but I will stay each night at mum & dads just so mum isn't alone trying to care for dad, if it gets too hard for mum during the day I will resign from work & care for dad, my partner is my strength & he is 100% behind whatever decision I choose, I guess Im lucky to have him beside me....Sorry for raving, I find myself doing that a lot lately...just rambling on..maybe itss my way of coping...Thankyou for your comment, its comforting having a place like this to go to, to write how your feeling. Many blessing to you my friend & thankyou for listening... ... View more