Hi Jules2, I'm new here & am 8wks post pelvic chemoradiotherapy treatment for T4 anal cancer. Am still doing small dressings on a few stubborn spots in my 'crevices' & applying pure sorbelline cream to the newly healed skin as this is all I've been 'prescribed' by the radiotherapy nurses. I am intrigued to know whether you used the Manuka honey throughout your entire treatment & recovery, & if you used anything else like MooGoo? Thanks. 🙂 ... View more

Hi DapneRose, I have had similar problems, I was introduced to the low FODMAP diet and it has helped so much, i have been able to add back a lot of foods, i also have been using essential oils and having great success. I was at the stage where the doctors go, well we have done everything now it is up to your body to heal. Easyer said than done, you just get over one thing and you get another bug. If you use oils you need therapudic grade, it has made coping a lot easier.   ... View more

Tallypez, it's a huge thing to have a hysterectomy especially at your age. We have to be patient I suppose with people making awkward and thoughtless comments.  It took me a while to accept my diagnosis and prognosis and finally the news that my endometrial cancer had metastasised. I really feel for the young who have to go through all the difficult decisions that have to be made. It's hard for family and friends to understand unless they have gone through it themselves. Su ... View more

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I'm having my treatment done at the Royal Brisbane. My initial op was done in Bundaberg, but they didn't realize till the thyroid was removed that lymph nodes were involved & that more surgery may be necessary. I was then referred to the top guy at the Wesley who doesn't want to operate for at least 6 months to allow the first op to heal properly as I had a couple of infections. He referred me to the cancer centre at the RBH where the iodine & radium treatments if necessary are done. I can't complain about any of the medical team, just wished I would have been referred to the guy at the Wesley in the first place who would have likely done the same op as you had. ... View more

Well, I had my review and the GP management plan for my physio is set for another year but the dental plan is in doubt. The GP doesn't know what will happen. He thinks there are three options but doesn't know which one the Govt will choose. 1 continue to fund the program, 2. continue funding for existing patients (no new patients after Nov 1) or 3 scrap the program altogether after Nov 1. He wrote my dental plan up and has sent it off to ensure that I will be covered if options 1 or 2 are chosen. Has anyone heard anything more concrete? CJF ... View more

OMG...they are really amongst us!!!! Do you have the phone number for the organisation? We can all meet up on their forum :-) I laughed so much at this. Thanks ... View more

Hi Lisa, My name is Veronica. I am 31 (just turned 31 in Jan) and I also just lost my husband, Simon (36) to GBM in Oct 2009. It's hard... We met when I was 18 and have never been apart until now. We have a 7.5 months old son together and I am terrified of the future!!! Lisa, I am soooo comforted to have read your post - I now know I am not alone (felt like it though). I try to smile, I try to get on with things, I try to breathe but it all takes a lot of effort. I know what you mean about friends and family going back to their own lives. It's lonely out there but I feel bad asking them to stay a little longer. I am feeling so many things at once that it is hard to differentiate them. I like to constantly talk about Simon because it makes me feel good but I know people are looking at me strange. Why should they feel uncomfortable when it is me who is grieving? Lisa, I hope we can be in touch. I hope we can help one another somehow. I hope we can both heal and learn to smile and laugh again. I want to take a full breath of fresh air without feeling the tightness in my chest. ... View more

Hi Kakapo, I've recently started treatment for Uterine Cancer, but my doctor also refers to it as Endometrial Cancer as, in my case, the cancer started in the lining of my Uterus and spread to an ovary and pelvic lymphnodes. So, unfortunately for me my Cancer is now at stage 3C instead of 1C like originally thought. My mother passed away from Breast Cancer years ago, so maybe there is a link between the two? One of the drugs they were giving me for chemo previously was one for breast cancer. Now they've changed it to just Taxol and Carboplatin. It's such a hard thing to do. I'm really finding this a very hard diagnosis to deal with. ... View more

Hi Cindy, No I don't have Vulval cancer but had Anal cancer which does leave me vulnerable to vulval cancer and if you had radiation our areas of treatment are very similar so I thought I would just drop in and say hello. Not quite who you are after ...sorry.... but all friends are good friends I hope. I did read your bit about menopause though and I went thru menopause at 41 after my radiation and it does make you feel pretty crappy. My oncologist didn't address this at all and it was up to my GP, endocronologist and i to sort it all out. Am happily on HRT and finally on one that is good for me after many trials and errors and I am thankfully feeling the benefits. Find a good GP, they are worth their weight in gold - I found my oncologists are just interested in curing the cancer and not the fall out (not complaining in the slightest as I am happy for them to focus on the cancer :-) Hope you are travelling ok,and am happy to chat anytime. Thinking of you Sharon xxxxx ... View more