Hi Tom, I hope that you are going OK. It's been a few months now but I bet it's not any easier. It's hard, it's shit and nothing anyone says is going to take away that pain. I've lost too many too young and then myself diagnosed at a young age, it's more painful sometimes watching someone than being the someone trying to be strong for everyone else. I am so sorry he was taken too early and I hope that you don't turn to any bad addictions to cope, seeking professional help when ready can be good and be a safe space to let it all out. Just try and remember that your here, maybe do things for him and make him proud 🙂 I try and hope that some how (I'm not religious) that it gets back to them, or at least I'm here to do it, to fight on in life and to keep strong. (we will always have bad days) I know it's so hard at such a young age to lose someone and then think why didn't I see them or do more with them why was I so busy etc etc and we can go on forever, they know that you love them and none of us saw it coming, don't regret the time you didn't have but just reflect on the memories you do. I lost my cousin she was only 34 and I was 28 (and just diagnosed) and I went through regret and all sorts of emotions for years, partly because I was going through it now, it's not easy on anyone, and everyone has there own lives and that's ok. Cry and get angry when you need to, don't try to hide your emotions, your pain because it will surface in other ways that are potentially more harmful. I really hope this reaches you or that your doing OK. Keep fighting through life and we're always here if you need us again. Great place to vent. Mags ... View more

Hope your doing well... This forum got lost with all the others x Maggie ... View more

Hi Mia1    I know what you mean, it's hard. Cancer patients start to feel like a burden but we're just trying to share what our life is now. It still amazes me that's its pretty much ok to talk about anything but not cancer! Always here if you need to vent and let it out. The road is scary and it's ok to feel like that, I know what it feels like to want all the worries to go away. Thinking of you x  ... View more

Hey, I have finished my treatment this year for Anaplastic astrocytoma brain tumour stage 3.  After surgery, I was able to be put on a trial which involved the standard radiation (about 6 1/2 weeks ) and then 12 months of chemotherapy, which consisted of temezolomide 5 days out of every 28 for the 12 rounds = 12 months. I had my first clear scan in December 2015 and just had a follow up earlier this week and still no re-occurance.  I found it's a hard decision on what to do with so many things out there, I trusted the doctors etc at the hospital and feel that if it does re-occur, then I would consider other therapies.  Cheers, Maggie.  ... View more

I'm sorry that you are going through this, it's something that no one would wish on any living being.  Do you have family and support of friends etc? Are you still having follow ups and what is happening with any treatments? Have you looked around to see if there are other options available to you? (I am really hoping to not offend you in anyway with the questions, and if you don't want to respond to any please don't feel obliged) As for anyone saying they don't believe you have cancer....I wouldn't be saying anything nice back to them, that is something that really gets to me is that people who are ignorant and don't understand anything of the process BUT feel qualified to say something.  Cheers, Maggie ... View more

I am struggling and working with a psych to help change my way of thinking. What you wrote has helped in my eyes Mark and I want to say thank-you.  ... View more

Hi Beatrice, Anytime! It did really start to drain me, I felt like it came out of no where. But speaking to the oncology team and my GP etc, it's made me feel better about the need to have my space and the ability to say no to people, I always struggled with that one (still learning but getting better). I did however unfortunately distance myself from some friends who haven't taken it very well, they really don't understand some of their behaviours so that is a really big challenge. Personally I am doing ok right now, trying to get a project going that could help raise awareness for brain tumours. It somehow helps me in my recovery, it doesn't stress me, that and my blog are really great. I am not currently on treatment, finished 12 rounds of chemo in May this year. How about yourself? How are you going with everything? Are you on treatment and how is it? Wishing you well xx ... View more

This is true, I didn't realise the total impact it had. And how easy it is to fall apart when you hear something when your expectations are different! I need to find my footing in the "new" normal post treatment. I understand it will take time, and the time I need is just that. Thank-you for replying and reminding me I'm not alone, I am hoping to find a support group near home, and going to a wellness seminar in november, am hoping these things will help adjust. Cheers, Maggie. ... View more

Hi there, I completely understand how your feeling, I was really open about all of mine, but it did involve a car accident on the way home so I didn't have as much of a choice. I felt this way through treatment too, but I just kept reminding myself they were only doing what they thought was the right thing. But I have come to a point where I have distanced myself from people, because it was really becoming too much and I needed to deal with the emotions and anxieties before I can go telling other people what is going on? I completely understand, it's such a shit and hard thing to go through and there is nothing wrong with being private about it. I hope you know this is an open space and I am happy to chat any time. Wishing you the best through this difficult and shit journey . xx ... View more

Thank-you both, it is really hard, my friends try and be helpful and I am starting to get frustrated because so much has changed, and I know they can't understand. I just wish it was over, not sure how I am going to adjust, but it takes time.... Thank-you x ... View more