Great to know, Thanks for sharing Karina. Regards ... View more

Hi @Melisa0612 - I'm sorry my reply is tardy. My beautiful Mum passed away in August and I struggled to handle anything dealing with cancer.   I'm afraid I wouldn't have been much use, as all I knew was what I outlined we tried for my own Mum - they tried that gemcitabine on her and another chemotherapy when that failed. I can't recall what it was but it was also unsuccessful.   If your Mum had been eligible for immunotherapy it may have helped but I don't know if they tried that for her? There are certain markers needed for that from what I understand. My Mum didnt have them so it wasn't an option for her.   Sending you so many hugs, I am so sorry to hear about your Mum's struggles with cancer xxxx ... View more

Hi Capt'n...    Sorry to hear it's trying to mess with you again.     Came across a fellow named Joe Tippen and research on a product called Fenbendazole...decided to become a guinea pig since my throat ulcer has been getting progressively worse.    My email is Googling1757@gmail.com if you'd like to keep track of how this goes.   Cheers, Joe ... View more

Hi Jenniferwang,    My deepest sympathies for your loss.  Please don't forget that we are here for you still.  Take care & look after yourself .   Budgie  ... View more

I'm riddled with tumors all benign - looking for a new liver now ... View more

Hi Malcolm    How is progress ?   I started my chemo today. It sucks balls and hasn't even been 24hours.   I've actually been good at recovering weight since surgery. I started at 93 and back to 91, but I haven't recovered it as muscle. Still we need fat too. I'm just trying to keep moving and extend my exercise daily.    Now with chemo starting, another life adjustment. I'm keen to keep exercise frequent to fight fatigue and weight loss.   I hope you are doing well. Hang in there.   Cheers   Phil ... View more

Hi SpunOut   Staying positive would be a real challenge for you. Drawing from my experience, I am finding it difficult. I have stage 3 bowel cancer. Just met with the Oncologist and I'm starting chemo next week. I feel like a bit of a tool. Reading your story and many of the other hard cases on this site, it makes my cancer seem like a walk in the park by comparison. Yet, being positive is still a challenge for me. I've been fighting off depression the last few days. The whole chemo thing is very confronting.    When I've not been feeling positive, I've mostly been angry or depressed. I kind of think they are the same thing but anger has energy, where depression has none. Anger seemed to work for me, but not advocating that it was particularly good for me. Someone else on this forum advised me to channel the anger against the cancer. That helped, but I was kind of doing that already.   Anyhow, I don't know if I'm offering much in the way of support. I wish I could tell you everything will be alright. I am not the kind of person to patronise others with unrealistic sentiments. You have a tough battle ahead and it's a real shitty situation. Hang in there and keep fighting. I think everyone on this forum will tell you that cancer has altered their lives significantly. Things will never be the same. You will need to reinvent yourself as you move forward. I hope you emerge from this experience as a stronger person with a grounded view on the important things in life.   Stay strong. Don't give up.   Phil   ... View more

It's ironic - the one thing I want, above all others, is for my children to outlive me.   I just don't want it RIGHT NOW, please and thank you.   My kids are aged 6-10.  Youngest was 4 when I was diagnosed.  Middle guy (now 😎 is autistic, and we have a special bond.   The idea of him coping with the grief of losing his dad ... it .. it wounds me in a way I cannot describe.  It oppressively crushes down on my soul, it's just awful.   But .. I'm not dead yet, in fact, I'm lucky, my treatment worked and I'm (touch wood) cancer free.   I hope your treatment trajectory gets better, it sounds really bad that the cancer has spread.  As your son is 15 years old, the only suggestion I can put forward is two-fold:   1) whether it's a month, a year, a decade or longer:  love the bugger as hard as you can for as long as you can (goes for wifey too) 2) get a camera, and record messages to your future son - if you survive, you can still watch them together and celebrate that you're alive .. but if you're not, I think it will comfort him to be able to connect with his dad on his 21st birthday, or after he marries, that kind of thing .. just think of those future milestones and record little messages and save them on a memory stick marked "I love you, Dad" (you know what I mean, just name the files for what they're about "21st Birthday" "Feeling Blue?" "Graduated High School" .. and don't taint them with your grief, be as natural as you can - he'll always have that to keep you alive in his heart)   Just my two cents - sorry if the suggestions are gross or creepy to anybody, but I personally, were I bereaved, would love to have messages from the loved one (maybe not at first, but later, after that first period of ravaging grief has passed) ... View more

It sounds like your dad has had all the typical type of treatments that I've read about.  Not sure what trial he was on (name).  I haven't heard about prostrate cancer in the bones actually going just kept at bay so that was interesting.  I don't know what city you're in but there is a newish PSMA scan which is more accurate that the previous PSMA.  Not every hospital has one of these. This proved to be true as it showed up my husband's cancer much better than the test he'd had not too many months previous.  Have a look on an America site HealthUnlocked and go into Advanced  Prostrate Cancer.  There are lots of men's PC histories and also men who I think have a medical background who shed some light on things you ask about.  I've found it excellent and always.  My favourite person is 'fisherman' .  Because there are so many men posting on the site I always find something that relates to what my husband is going through.  Also most of the trials both in US and OZ are discussed on the site with  American, Australian and men from other countries have been on and these share how things have gone for them.   ... View more

it seems worth it to go for this   the statistical norm is you have a case like some other and respond to the 1 or 2 or 3 most common treatments. ... View more