Blogs - Page 136

OK, so I have initiated palliative care for my partner who has continued to refuse support from palliative care team even during the first meeting for assessment. Well, in a way I don't blame him. He's more active (not staying in bed the whole time) in the past few days even though his speech can be good sometimes and bad sometimes.

Anybody with GBM had the chemo tablet called CEE NU.

Yesterday a friend called me at 7.30 in the morning to ask if I wanted to go to the Balingup Medieval Festival. So off we ventured around 10ish in the morning and we went through the small town of Kirup. They happened to be holding a Relay for Life fundraising drive, complete with the obligatory sausage in a bun happening! We wandered into the small hall to look at some of the quilting exhibits and to see what else was happening. I bought some raffle tickets and entered into another money raffle, which I asked them to redonate should I win it.

Today we had meeting with chemo doctors who have brightened my spirit just a little. They believe I can have the chemo orally so that I don't have to have a Picu line or portacath inserted as this would be too distressing for my girls to see me with for six weeks straight. Plus it also decreases my risk of infection along the way.

Hi there, thankyou for your input, it helps just to not feel alone in this. I guess I just need to get on with things and think about the next step - reconstruction surgery - this is what I tell myself anyway! Still, sometimes you can't help wondering in the middle of the night, hope this will fade in time.