Blogs - Page 185

It is 6 weeks since my Ivor Lewis oesophagectomy and although still suffering a few aches and pains from the op and very positive histology results with 15 clear lymph nodes and no cancer outside the tumour area. The only legacy from all the type of cancer I have endured is the J tube ( feeding tube) into my intestines and I have been nursing along since September although it has only actively been in use for approximately 6 weeks of this period and I cannot wait to have my stomach area back to myself without worrying about it pulling.

Back to work I go on Monday to lots of questions I can not answer. Got a letter from the hospital the other day, said an appointment will be made for me in about 3 weeks time my case is going in front of a board to see what happens next.

Feeling very excited at the moment, we are bringing dad home from hospital tomorrow, I pray that things will go smoothly & dad will keep getting stronger each day..... I also hope that some of dads mates will feel comfortable coming to visit him at home, they would call by & see mum & ask about dad but they couldn't face seeing him in hospital... Will keep updating on dads progress. I think I can finally see that light at the end of the tunnel :) Big Smiles Alison 🙂

Hi all, I was moved onto Folfirinox today after show no signs of responding to the Gemcitibine. Having gone through what's involved and the possible side effects with the oncologist, I was wondering if people could share their experiences. One of the big questions I have, is how do you sleep during the 46hr iv period.I am getting the port fitted. I have this worry sitting in the back of my mind that I will toss and turn and rip everything out.

Hi, I was diagnosed with Thymoma in November 2011. This was incidental as i had my gallbladder removed in September 2011 and was having difficulty breathing. Thankfully my Dr had a chest xray done which showed "something" in my heart. I was then referred to a Cardiologist and after further investigation it was shown that it was a thymoma and had nothing to do with my heart (thank goodness). I was then sent for a biopsy which came back as benign (another phew).

Has anyone found out the best way of coping with peripheral nerve damage, mine is chemo induced and is affecting my feet & lower legs & it hurts like hell. I started taking amino acid tablets & saw an acupuncturist today. Just trying to walk hurts so if anyone has discovered something else that helps I would love to know. Mazsa