October 2020
Our friends over at BEAT Bladder Cancer Australia are holding a Zoom Q&A forum on Tuesday, November 17 th , 7.30-9pm AEDT with four leading health professional panellists who will focus on the various aspects of integrative health as they relate to bladder cancer.
More about the webinar:
This webinar has been tailored for anyone who wants to know more about living with bladder cancer and struggle to find the latest research.
‘Having four incredibly well-respected health professionals to answer questions on wide-ranging topics such as exercise, nutrition, the role of complementary medicine and the importance of overall wellbeing as they relate to bladder cancer is such an honour,’ said BEAT President, Adam Lynch. ‘We ask that nurses, carers and patients submit questions prior to the event to ensure that the panellists cover all the hot topics in this increasingly important field of integrative health.’
Integrative health takes into account the physical, psychological, social and spiritual wellbeing of a person with the aim of using the most appropriate, safe and evidence-based treatments available.
An integrative health approach to bladder cancer, for example, would combine the roles of orthodox and complementary healthcare practices to facilitate a person’s optimal bladder cancer recovery and on-going bladder health in a wholistic way.
Panellists:
A/Prof Judith Lacey – Head of Supportive Care & Integrative Medicine, Chris O’Brien Lifehouse
Penny Smith – Head of Operations & Support Services, Olivia Newton John Wellness Centre
Peter Talbot – Head of Dietetics & Nutrition, Westmead Hospital
Dr Andrew Hirschhorn – Clinical Director, Allied Health/Physiotherapy, MQ Health
You can register online for free now.
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October 2020
Hi Brogsie, Hope you are doing o.k. and maybe have heard about the trial you want to participate. I have never participated in a trial but here in the USA they are running advertisements about Nivolumab and Ipilimumab as a new dual therapy which surprises me in that my oncologist said she started giving it to her patients in 2014 so it has been around for a while put my doctor was always telling me "We don't know alot about the side effects". I hope that if you qualify for the trial, the side effects are not too bad. Believe it or not, I have not had Chemo. The SBRT radiation was really problem free but immunology was a different story but it prolonged my life. I am noticing my doctors at cancer center are saying, giving me more time, prolonging my life. No more talk of cancer free which truthfully can depress me at time. I definitely would paint my toenails and nails black! Here, the young girls call it "goth". Just no black lipstick. (ha!ha!). Sometimes, I have my daughter paint my nails and toenails just to feel better. Pale yellow is my favorite color. I am 69 and live in northern California about an hour away from our state capitol, Sacramento where my hospital, cancer center, eye clinic and other clinics are all together. I do have been trying to get my ducks in a row too. I get so overwhelmed at times with all that goes with cancer. Just yesterday, we spend 2 hours traveling to hospital so I could get my Covid test as this is a requirement before surgery and apparently my treatment is considered surgery now. I have it tomorrow and things have changed somewhat as now I am going to be put completly out and I might have to stay overnight in hospital. This procedure is something fairly new they are doing at my hospital now so I am slightly scared. They didn't schedule me till afternoon and said plan to be there 8 hours! My son is taking me and my husband, makes me happy husband won't be alone but because of Covid only 1 person can come in hospital with you. I can see how happy your 2 little grandsons make you. Sometimes it is hard for me with all the cancer details, etc. but I just have to try and really remember what is important. Thanks for listening and glad we are friends. Linda
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October 2020
Are you interested in online writing workshops?
It's About Us are running free workshops over the next few weeks for people affected by cancer, and they are free! The aim is to improve your emotional and psychological well-being, through writing.
The workshops focus on:
Session 1 - Why would I write a book?
Session 2 - Getting Started - Understanding the software
Session 3 - What do I want to say?
Session 4 - Writing Techniques
Session 5 - Completing my book
Sessions held 10am - 12pm Tuesday 20th & 27th Oct, 3rd, 10th & 17th Nov 2020. Yes, it starts tomorrow, October 20th.
Register for free here.
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October 2020
Hahaha Wombat yes, i can see that, i remember that frustration when nursing my years ago before she passed, (lung camcer and brain tumor) i would be like, omg if thats all you have to complain about. But hay its a huge lesson in compassion if nothing else, oh yeah and patience, and then more patience. And on your progress, wow from where you started yes that is positive, 💖
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October 2020
sorry i just read this now, I really hope your doing better. Please try and enjoy the time you have let every one in your life know how you feel if you love you love tell them .If you want to scream do it but just know there are others out there your not alone
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October 2020
Hi @Rikki1 , Never apologise for having pain or complaining about it. If you dont complain, no-one will know there's something wrong. Intense pain 4 weeks after any surgery is not normal. Do you think there's any chance of infection at the op site? I would advise you to make an urgent appt with your GP & get some stronger pain meds, & a blood test. Get some answers to put your mind & body at ease. All the best Budgie
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October 2020
1 Kudo
Thanks for the informative post. This is helpful. I did not of this lynch syndrome until I came across your post. thanks
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October 2020
Ok, done with spamming for a while now. Today was the last of the main content posting, thank you everyone for bearing with me.
Over the next few days, I'll be concentrating on adding descriptions and images to the categories but the information is all there.
-Kate
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October 2020
2 Kudos
I’m a 35 year old single mum living with stage 4 Ogliometastatic Breast cancer secondary to the bone. I was diagnosed in Feb 2020 and have had 4 months of chemo which finished on 17th June, had surgery to remove the tumour and 10 lymph nodes 1 of which was cancerous. I am on day 3 of 6 weeks of radiation 5 days a week and still fighting strong. My son is 4 and keeps me going. I am a survivor and I will beat this for him and my family.
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