Hi Mary60, Thank you for sharing your treatment experience. I am sorry to hear it was not a positive one, I hope the medical team will be able to find a less invasive treatment for you. Also hoping that other community members would like to share their experience with you.   If you would like to talk to one of our wonderful Cancer Council oncologist nurses for more information about chemotherapy effects (or anything else) please call 13 11 20 between 9 and 5pm.   Best wishes Susana Cancer Council Online Community ... View more

Hi Xandra, Thank you for joining our online community and for reaching out. Cancer takes people on an emotional rollercoaster, as you mentioned with lots of ups and downs. You feel overwhelmed and more and more questions pop up in your head every time. Handling emotions is never easy, and it would be a good idea to talk to a professional if possible. If you live in Australia I would suggest calling our support and information line on 131120 between 9 -5pm to find out if there is suitable emotional support available for you. I am also sharing with you a booklet explaining emotions and cancer I hope you find it useful.   https://www.cancer.org.au/assets/pdf/emotions-and-cancer-booklet   https://www.cancervic.org.au/get-support/living-with-cancer/emotions/emotions-overview.html   Kind regards Susana Cancer Council  Online Community   ... View more

Hi Lizzie1, Welcome to the Cancer Council Online Community, I hope you find information and support from our community members.   Kind regards Susana Cancer Council  Online Community ... View more

Hello Sank, Thank you for joining the community and for sharing your pain. Certainly your husband is a trooper, and he is lucky to have you by his side, providing much needed love and support . All these emotions and feelings that you are currently experiencing are normal, cancer takes everyone in this unwanted rollercoaster of emotions. No one is ever prepared to let a loved one go no matter how old they might be. Sometimes you will feel jus just can't take anymore, just hang on in there one day at a time.   if you comeback to Australia and would like to have some emotional support please call our Information and Support Team on 131120 Mon to Fri, between 9 to 5.   Warm regards Susana Cancer Council Online Community     ... View more

Hi AB  I too have bladder cancer but a little different as female, mine is non muscle invasive too and has been for 18 months, although it is not performing as to  how cancer should, it is high grade T1G3 as I also have ureter cancer, but you should go with BCG I didn’t have any side effects other than on same day , a  bit tired and a a few aches, Panadol was all I needed and when I woke up in the morning I was fine  My professor has told me my cancer is complex and complicated as with the two and they are presenting different challenges constantly slowly  so try the treatments and there is some good info from cancer council  ... View more

It's Felicity here from Cancer Council Supportive Care Team,  I am so sorry to hear what you are experiencing. Especially at a time that is so stressful for the entire family. Please feel that you can reach out to us and have a chat on 13 11 20. Alternatively you can call 1800 737 732 Which is 1800 RESPECT.    Best wishes,  Felicity Supportive Care Cancer Council NSW  ... View more

Hi Jano, I'm sorry to hear that. It's natural and normal for you to be feeling that way. So my big tips for weight loss issue are protein shakes and oils. Buy your own protein powder and then you can drink a very nutritious drink without having to eat. Buy high quality olive oil and MCT oil and you can take tablespoons at a time. It's high calories and easy to ingest. I hope this helps. Sending you lots of love.  ... View more

Hi.. I was diagnosed with stage 4 lung cancer August 2023 and was already on the DSP. Treatment has all been free, with help for travel and accommodation being covered by IPTASS and CanAssist as I'm in a regional area and had to travel for treatment. Ask your cancer nurse about the help available. I too was extremely concerned that I wouldn't be able to afford treatment,  but that has not been the case. Good luck with your appointments. ... View more

Hi Susana  thank you for your reply  I have looked through Cancer site, unfortunately cannot find information on Heated Mitomycin C  I had three treatments of intravesical Gemcitanine and Docetaxol last year  the Heated Mitomycin C is the last option for me before the ‘gold standard’ cystectomy I am high grade T1G3 bladder and ureter cancer with a stent  I am well and all good    ... View more

Its so useful to share personal insights and experiences. However it is recommended that you speak to your Doctor and treatment team as to the best treatment options for you.    We have a program at Cancer Council called the Connect Program where you can speak to a volunteer over the phone who has had a Cancer experience and can share their insights and experience. If you would like to find out more about this program, please call 13 11 20.    Warm wishes,  Felicity Cancer Council NSW Online Community  ... View more