Blogs - Page 190

Well today has been a crap of a day, Les got up this morning looking lousy,had light breakfast as usual but felt nauseous straight away,he went back to bed around 11.30am and slept till 5pm awoke and was immediately sick,was very upset and has talked about going off all treatment as his quality of life sucks. He is into his third cycle and we just don't know if it is going to be any better.

Well it has not gotten any better, they had to take Les off the clinical trial as it was making him extremely sick, so he is just on the 3 week IV course and Xeloda tablets everyday.But things have not changed, we don't know if it is the chemo or the cancer that is making him so sick anymore, no one seems to have answers. He is down to 59kilos now as he cannot eat as he just has a horrible metallic taste in his mouth all the time,lives on Sustagen, jelly and custard and weetbix. It is ok for these people to say he must eat more, but when everything tastes like shit(pardon)it is hard.

2nd dose of chemo today and have to admit I was a little worried after what happened last time (Even though things weren't weren't related to the chemo and were existing underlying problems). A few hiccups during the day (the IV line blocked with the dose still in it and needed replacing, and my oncologist wanted a blood test but hadn't seemed to have told anyone - and this was after having blood done yesterday and being told by the head of the research team that everything was good to go - go figure). End result was that things took about an hour longer than they should have.

Well it has certainly been an eventful 10 days since my first chemo. It all started with a fever on Thursday night (the chemo day) which turned out to be something that was as a result of the chemo. Friday was fine, temp normal and energy returning during the day. Saturday morning at 5am everything changed.

In 2 months time it will be 2 years since I was diagnosed with cancer. I just had a phone call from my youngest sister ,18 years younger than me, the first contact since she was told. It was to say thanks for the Christmas card we sent. Actually my husband did that one amongst others. I had crossed her off the list in my mind.

Hi I'm Brent a 33 year old who has been living with a brain tumour for the last 20 years of my life. I've had plenty of brain surgery operations, chemo and radiotherapy and I've come close to death a couple of times. Why do I tell you this......because if I can survive this you can too. Good luck to you all and keep on fighting.