Hi Rick... I did consider trying the blog thing but, after insurance running out and my deciding to pretty much let things take their course...I found that I had no way of knowing whether the new problems arising by the 6th month were chemo/Rad related or the cancer returning. My neck and face became pretty swollen, and somewhat disfigured and once again swallowing and eating was becoming problematic. I pretty much decided to let it take its course and check out when eating became too painful to try. A couple of weeks ago a friend asked me to google fenbendazole and Joe Tippens. Research on Fenvendazole lead me to trying this. I'm on Day 4, and can only report that my ability to move my neck vertically and laterally has suddenly dramatically improved. My appettite has also improved, though my ability to swallow and the accompanying pain are still the same. I will be happy to share the specifics of my findings on a personal basis as I journey through this 3 month experiment if asked. My email is firstname.lastname@example.org. The reason why I hesitate to post a blog on this group is...I have no clue where this experiment will lead and none of us here need false hope. The research on Fenbendazole looks pretty convincing, however, and I was sinking with no help in sight... I will certainly share everything I document for the asking! Cheers, Joe Aristy
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Hi CaptainAustralia For me, the only answer winds back to that Manly Stereotype. Find your inner strength. Adapt and carry the weight of it yourself. Until you can't. It's interesting that you should say this. I think, often as adults, there are things we feel that we just need to get on and deal with it. I've sought counselling or assistance from a therapist/psychologist on three occasions in my life. Two of them were around the time that my father died. The first one I saw was a therapist. He asked, and I told him why I was seeing him and what had happened proceeding this. The look on his face was priceless. The next sentence was "I think given what you've been through you are doing amazingly well, but what can I do to help?". I didn't bother going back. The next one was a clinical psychologist, but after two sessions, she conceded given everything that had happened there wasn't much she could do. Righto. Next. I think you're right. I'll just carry on. Until I can't. -sch
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Hi @Glenys , How are you faring these days? Have you finally gotten your taste back or are you still craving the S&VC? I have moved on to a home-prepared trail mix of nuts, rice snacks, soy snacks and dried fruit. It helps to keep my weight up, but I am starting to get a bit 'over it'. And have you managed to get access to medicinal cannabis through your doctors? If so, is it working for you? If not, what is stopping you? I have been fortunate that I have never felt the need for this sort of alternative treatment. Please keep us informed on your 'journey'. Hugs, Rick
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.