sorry you’re being brushed off. quite frankly this is appalling. it sounds like you’ve got some pretty serious symptoms going on, what are they waiting for? i’m sorry the public system is being so dismissive.   i’d 100% pay to see a gynecologist, they don’t mess around and you’ll get some answers asap hopefully.    please give us an update and let us know how you’re going x ... View more

Antt00, I am so sorry to hear about your diagnosis. If you live in Australia  I would like to suggest calling our telephone and information line on 131120, to see how can we help you. You can also contact Canteen for support. https://www.canteen.org.au/   Warm regards Susana ... View more

Linda I will reach out to them and we have been together over 42 years and best friends  ... View more

Thanks Myke49   for reply, good to hear your going well, my doctor would prefer me to have surgery, however not an option I want, so only other option, chemo which I will do, major concern is right ureter will start to close, I only had stent out in September but if it means a stent again happy to go with it. good luck going forward  ... View more

Hi Gail77, If you want to read a lot more reviews on this subject. Look at SteveC version on this site about this. I think there are 93 replys to his blog. Take care everyone Cheers. Type in SteveC  Had cancer got no friends. ... View more

Months later I'm doing well. I got my own place. I feel good most days   Getting 6 immunizations tomorrow as the transplant wiped them out.   One day at a time ... View more

Hello My late father had mesothelioma and passed away back in 2004.  He had the talc treatment you mentioned but there were a few complications and he ended up having the talc removed. Please bear in mind, however, that this was in 2004 - so early days for this type of treatment - and things have no doubt improved since then. I don't remember Dad having fluid removed but that could have happened without me knowing about it. Back in 2004 there were fewer treatment options and PET scan monitoring was just starting.  Dad was also  involved in the Vitamin A research which had been running a few years - not sure if it is still running though I think it is unlikely after all this time. It sounds like you are very forward thinking and have considered a lot of the different options available to you. If you haven't already please talk to your family to let them know what your decisions and wants are  so they can support you in the way you want and need. Also talking to you doctor and pre-planning for possibilities like the need for increased painkillers and the possibility of in home care (like help with showering) may save some time and stress later on.  If you haven't already had an Aged Care Assessment Team visit it may be worth doing so - this will help with getting access to different services including things like Disabled Parking vouchers, in home services and any equipment you may need - e.g. wheelchair, personal alarm (pendant if you have a fall and are the only one home).  Your wife may want to register with Carers WA for some independent support and resources if she needs it. Best wishes to you and yours.   ... View more

Thanks heaps for that, It makes me feel a bit better hearing that you went through a bad time and came out ok.  I decided to talk to my oncologist and she was very understanding and suggested I get some therapy before going ahead.  All the best Doug ... View more

Hi Joh38, I am so sorry for what’s happened to your precious wife. When my mum was very unwell she had to have anaesthetic and we never had a proper conversation with her again. Her words were completely jumbled and it was so distressing for us all. She died a few days later. She was in her 80’s   The anaesthetic didn’t cause her death but it did something to her brain for sure. It was a terrible time. Sending you prayers and love for you both🙏💕 LindaG ... View more

I’ve had the hemicolectomy and so fortunate that it was done laparoscopically. Hospital time was only 4 days so I’m happy to be home again. The cancer was also found in one lymph node so I will see an oncologist in a few weeks to discuss further treatment. At the moment I’m just very grateful to be recovering well.  ... View more