Hi Helen37,
My husband is also terminal, his primary cancer was oesophageal with secondaries in his abdomen/peritoneum(spelling?) and a secondary tumour on the brain was discovered in early December.
The unknown time frame is very distressing, we were given a prognosis in December of 2-3 months, obviously we hope they are wrong.
I feel like I am walking a tightrope, trying to keep the balance between being 'too real' and 'being too hopeful'. I am scared of getting my hopes up too high as then I will have further to fall.
Talk with your boyfriend's oncologist/medical team about all the questions that you have, they may not be able to give you all the answers, but if you don't ask, they're not likely to tell you anything.
It is exhausting being the partner/carer, try to remember to take time out for yourself too. A very hard lesson to learn, I know, I am still working on that myself!!
Thinking of you and sending you strength and courage,
Jill.
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