Hi InternetTuffGuy,   Thank you for reviving the thread to get some support during all of this. The side effects of treatment can be such a whirlwind for people, especially as they have to get to know their own body again. This sounds very tough and frustrating. I'm glad there are others online who have been able to share their experiences and offer ways to help through this. If you need any additional support, we have our 13 11 20 consultants who are oncology social workers and nurses who can offer some pathways for more information, there's also our counselling service if you need some help dealing with the mental frustration, and we also have our Cancer Connect service where you can speak to those with their own lived experience of prostate cancer over the phone. Call our 13 11 20 line number if you need any of those.   All the best Ash CCNSW ... View more

Hi  you have been on a health journey, and like you my cancer journey and treatments has been pain free  although I still believe cancer sucks  your faith has been on your journey and I know prayers from afar have helped me  my good wishes with you on your journey  ... View more

I am so sorry to hear about your husband.  my husband had chemo for few months which didn't work for him and he eventually decided to cease having chemo.  from my perspective it is a very personal choice whether to decide to have treatment or not.  I said similar to my husband and reassured him that I would fully support him with what ever decision he made.     with my husband deciding to ceasing having chemo we were not given any other treatment options.  the oncologist advised he would happily see my husband for regular appointments to check results of blood tests and organise for day stay in oncology ward for top of anything etc potassium.  it also meant for my husband that he got to spend more time at home that he had been.  few days after each chemo treatment he was having to be admitted back into hospital for approx 1 week due fluid retention or infection/s.   my workplace offers a counselling service that is accessible by staff and their family members.  may be check if your counselling service through your work is able to assist your daughter.  another possible option is seeking assistance through social worker at your local hospital.     thinking of you and sending you lots of hugs ... View more

Hi ESha 1990, Thank you for your recommendations for coping with cancer. Much appreciated. maveson2 ... View more

Hi Susie, thanks for posting. Yes, all your feelings are indeed valid and seem totally appropriate to me. Sorry to hear about your sister. AML is indeed nasty. There are times when I feel very upset and really dont know my next step, seems anything I want to do just isnt worth it, why bother. Thankfully this doesn't last long. Recently I caught  a reflection of myself and realised how sick I look reality was about to drag me down until I walked into the sunshine and saw the huge river and heard all the birds sqwarking and singing, nature has such a positive effect with me. There's no doubt your sister needs your love now, use your time, just being with her is valuable. Its my belief that conversation doesnt need to be too deep, about the past, the things your sorry about or anything too serious. Simply being with her at a difficult time will help you both feel ok.  ... View more

It always pays to double check your reports and scans.  I had a full body CT scan on October 2021.  Got the thumbs up, no new growth.  Treatment looking good.  In December I broke my right shoulder.  An x-ray picked up a 40mm tumour in my shoulder bone.  A review of the October scan showed it was there back then, smaller, but no-one saw it.  Not the radiologist or my oncologist.  These are all private specialists too.   ... View more

My advice is to get in there and start badgering I know they are under pressure but this is could mean the difference between you putting more pressure on the system later if left. I had to really push this week to find out what was happening with me because a couple of things didnt feel right and didnt add up I finally got to speak to someone that had the time and willingness to do the digging around and it took an hour to have it sorted out (one of the processes hadnt been completed and I hadnt been transferred over to the right department). Your GP would be a good start they usually have access to any hospital/test records and should be willing to enquire for you. At the very least the misplaced sample has to be sorted out even if it means that you have to have another one. If it is too much get one of your friends or loved ones to help you even if it is just to be with whilst you phone itcan be good to have someone who can think rationally when we are in a distressed state. Sending you lots of determination and strength and hope you have it sorted real soon HelenBeee xxx ... View more

Hi   Thank you so much for telling me what you have been through, and the advice. It sounds like you have been through a lot more problems than I have. I do wish you all the best, and home you find further help to ease your problems.   Barbara. ... View more

I am sorry to say that the VA missed my father's lug cancer, causing delay in treatment. His doctor pulled the lung x-ray, showed my dad there was nothing visible and stated the equipment was out of date. He had gone to our small town hospital and they caught it. Dad passed away before I had read these things, but if I had it to do over again, I would have him taking lactoferrin supplement, eating a few apricot seeds a day, and try the fendbendazole (dog de wormer) plan Joe Tippens swears saved his life.  Maybe it is all snake oil, but what is to be lost if the standard protocol isn't working? ... View more

Hi Tay10r, you def need to keep trying to find out what is the reason for your symptoms. It’s not “normal “! Something is not right. If you had a PET scan they could see if any more lymph nodes are swollen. Hopefully you can get to see a haematologist.  Lots of love and prayers for you 🙏💕 Linda G ... View more