Blogs - Page 176

Well, while it's been a tough few days after we heard the bad news, I could still manage and live my life. I could wake up earlier than usual to attended and 'participate' a full day workshop on Thursday with tired eyes and a mild hangover. I actually had swollen eyes from crying but a good bag of frozen peas did the job! I left my partner on his own on Thursday night and went to a friend's party. Being a cheap drunk, I had another mild hangover the next day but could still do some work on Friday.

I haven't been online for sometime now. I still check out the site every now and again. It is sad to see so many new members. It is sad to see that some members are no longer with us. You may be curious about my blog title. In May 2010, I wrote a blog titled "Our bed", that was the night before a hospital bed was being delivered to our home, in the last few weeks of my brave precious husband's life, not that I knew it was going to happen so quickly at the time.

So as expected its metastatic melanoma. Had a PET scan today to determine if it has spread further than the lymph nodes in my neck. Results to follow soon.... I don't really know how to feel at the moment. I think I am just going through the mechanics of daily life as best I can. I do think about the diagnosis, but I am more interested in what I need to do in order to get better.

I hate GBM! Yesterday, my partner and I went to see his oncologist for the latest scan result. Bad news, after 4 rounds of TMZ, the GBM bounces back. We were told that he has: - 2-3 months if he does nothing - 6 months if he goes with carboplatine + epotoside - 9 months if he goes with carboplatine + avastin (at our own cost) Two months ago, his scan looked so promising. How on earth could it change to the worst in this short time!? Not sure what to do now.