December
Yes it's hard wanting to find love or just companionship Hope we get answers Good luck
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September
You are so wrong and you are spreading misinformation. I’ve only registered to reply to your post to spread awareness. I was diagnosed with follicular lymphoma stage 4b in 2021 my blood tests were perfectly fine. also my aunt passed away from leukaemia. She had regular blood tests. Her blood counts were all good until it was too late.
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May 2023
I dont have experience with your exact class of cancer, but I can speak to managing the terror. In the immediate short-term you need to compartmentalise. (My advice anyhow) Don't let the mortality stuff, the I'm scared stuff, get too much bandwidth, you can't control what you can't control and the absolute key now is getting through the process. You have to surrender to that, lean into whatever aggressive treatment is available, and roll your dice. To manage your daily living, compliance with your treatments, medicine, whatnot - the better you are at doing that 'knuckle down and get through' thing, the better. You need to get further down the road. You can deal with the existential stuff later. That to be said - don't ignore it. If they say there's only a 30% chance of treatment, then you spend time with the people you love, you write up a will, do all the practical stuff you need to do ... but the UNKNOWN is the worst part of the early phase of dealing with cancer, and my advice is to tackle that head on, and the way to do that is accept it .. you dont know, can't know and just have to push through until you do. As to wider stuff .. I had a six months to live 40% chance at treatment, and that was six years ago. After cancer, I slipped into an existential hole, then I dressed up as the boofhead superhero Captain Australia and walked from Brisbane to Melbourne, raising $165,000 for paediatric cancer research. It's not over. You still have some time up your sleeve, and maybe more than you think. You can still do beautiful things, celebrate kindness, make laughter. You just have to get through the tunnel.
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April 2022
Many people live much longer than five years after they are diagnosed. For some people, cancer does come back and they will need further treatment. Most people who get cancer only get one type. However, some people will develop another type of cancer.
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October 2021
Hi there Karlz9, Oh my, you are amazing! Thank you for sharing. I opened your link and read Sandy's story. Amazing!! How are you doing at this point? My elastace is at 24 and not sure what this means other than they gave me proton pump inhibitor which has helped w nausea. Awaiting results of endoscopy biopsies and curious as to what they will decide to do if anything, w my pancreas. We shall see. I wish you the very best. You seem like such a strong person. A good example for me since I am a bit of a wimp. Thank you again for sharing. Peace
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October 2021
1 Kudo
Sorry to hear about you having cancer . There is nothing wrong with researching online and finding out as much information we can. My wife's ex husband found out he had lung cancer many years ago. He researched. Asked questions about it with his doctor. Against his doctor advised he only had a partial lung removed. He when through treatment and is living a active life and working. Stay strong. If I was 70 plus years old and in poor health i would ask if treatment is worth it. I'm waiting to hear back about what I have. One more test next week and we should know. I do know I have a family that loves me. In good health or poor they are what makes look forward to the next day One day at a time
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September 2021
Super Woman!! Hmmm that sore throat, not sure, your naturopath friend could help there and take a look. Mention it to your dentist. When the mucosa lining our throat gets dried out or even just a weeny bit that is a big open door for bad bacteria to settle in and inflame and proliferate causing a cold. It can happen to anyone anytime. I would rinse the mouth and then gently (with the softest brush possible) brush the teeth, gargle with salty water for 30 seconds to kill the bug, and then rinse the mouth with cool/warm previously boiled water. Then if you have a teaspoon of Organic honey, or a milky drink or eg custard that might soothe your throat. A lozenge like Strepsils (I luv the sugar-free lemon or strawberry) will kill a bug and I always have them in my handbag for emergencies. Best not to kiss anyone, but then again we live in COVID times. Watch the inflammation. You are exercising a lot. Yes you put us all to shame. But could you be overdoing it a tad? and that can stress your body as well not only in terms of joints and muscle but cortisol (which is damaging) and interferes with blood glucose, it's all connected, sorry : ((. A lot of exercise would require extra water, replenishment of electrolytes* (because you are sweating), extra antioxidants from wholefoods (veg fruit fish meat nuts grains) and extra protein (after the workout) because of the wear and tear of bone and muscle. And then you will need good sleep for the repair work to happen during the night. It's all about balance. Woman to woman, have you had a bone density test yet? Are you doing the meditation thinggy? *Hydrate but also replace Electrolytes (potassium, magnesium, calcium and sodium) : think in terms of banana or fruit with some nuts (potassium), milk (calcium), seeds/grains/beans/leafy greens/yoghurt/fruits (magnesium), a tablespoon of salted nuts/an olive/celery (sodium chloride). Or just have a natural yoghurt and eg banana smoothy or hummus dip with wholegrain rice crackers or cheese, tomato, avo on wholegrain. And, there's protein in all of these : )) You will replenish, and aid the development of muscle which is so critical to health, systems balancing, movement, and ageing. Have a great Sunday!!
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September 2021
Hi Peter, I am so pleased to read that your special day was all you hoped it would be. 😍 I am planning a major 60th birthday party for myself , which is really a chance for me, my family and friends to all get together one more time before I'm no longer here. I didn't want to have them all get together and share all the fun times, achievements, memories, disappointment, love and laughs without me. There will be lots of guests, food, music, dancing, love , laughter and an sprinkling of sadness, but that's ok because that's what life is made up with. I think, its a lot like a living funeral . Cheers for now Caz1 xx
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September 2021
1 Kudo
I lost my wife four months ago and am struggling. I found a Facebook group for windows and widowers which has been extremely helpful (do a search, it's called Late Night Widows and Widowers). Counseling has also helped, but life truly is a nightmare. I wish you all the best 💖.
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September 2021
Just for an update, we tried to get a s second opinion on medical experts if its okay to delay the chemo. They told us that delay is prudent and recommended another course of action. We keep on holding on but as days passed, situation is becoming uncomfortable. Have anyone of you experience this?
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