Blogs - Page 104

My brother has Leukemia and is undergoing bone marrow cell transplant this coming week. I do not live close to the Hospital (VGH) BC. My other brother is coming from Thailand as a donor. I have tried my best to keep in touch via email, and phone and visits but I seem to be the one in the family that he projects all his anger upon. We have a diverse family of 5 siblings who do not get along at the best of times so this is a very stressful time interacting with any of them. It has become so difficult I have pulled out of the family dynamics and am trying to cope with

I keep having dreams about my husband... husband... sounds weird when i say it because he is no longer... yet was only mine for a month... in my dreams he is talking and acting so normal, yet i know he isnt supposed to be there... i miss him so much it hurts. I feel like he was just supposed to go away for a little bit and come back.. is this normal? I sit here in disbelief at times and think 'did i just get through that?'....

I hate the week leading up to an MRI. Every little thing takes on new meaning. A stumble, "is that a new tumour"?, a headache, "has it grown back'? My husband is living on Zanex and I'm on a razor's edge with fear. How long do we have to live like this? Why cant a cure be found?? I read the stories of GBM spouses and I hate the pain and suffering they have to endure. Watching their loved ones slip away and, I know it will be me some time in the near future who will sit helpless as my husband is taken from this world years before he should be.

Its been a while since I last posted, life has been super busy and I have been adjusting to a new kind of living.... Living and coping after cancer treatment and returning to some level of normalcy. Firstly I have gotten off all the pain medications and I am feeling much better for it. Although I still experience pain I am grinning and bearing it, managing on panadol, hot showers and bedrest. Its a new kind of living which Will take a lot to adapt to. Secondly I have returned to work part time. I have been back for about a month, its exhausting me however its nice to be back.

Hi everyone, I just need to vent here, because if I do it anywhere else I could hurt some good friends.

Let me start by saying that my Son is (just turned) 2 years old and we found a Wilms tumour on his left kidney (886g). RANT #1 Diagnosis We only found it because he fell on a slip and slide and that traumatised the tumour so blood came out of his urine. I thank my lucky stars (not god I am too mad right now) that his older sister (4yrs) was being a cow and pushed him over so this ordeal began.